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  1. Thread: Haircut

    by Pete
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    Haircut

    Got a haircut today for the first time since March 18. I was pretty shaggy. Every other chair in the salon was kept vacant. Everyone was masked. Hand sanitizer was available and being used. I was...
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    Re: Prednisone, Diabetes, Flare

    Came across this bulletin from Cleveland Clinic:

    https://health.clevelandclinic.org/8-prednisone-side-effects-how-to-minimize-them/?utm_medium=social&utm_source=facebook&utm_campaign=cc+posts
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    Re: Coronavirus and GPA

    My wife and I went to the OSU satellite center in Upper Arlington yesterday for labs. She has autoimmune hepatitis and was a month overdue for labs. I was two months overdue for mine.

    When we...
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    Re: Diagnosed yesterday

    JenPNW

    Welcome to the club nobody wants to join! Iím glad to hear youíre responding to treatment. I donít know where youíre located, but I hope you have reasonably easy access to a doctor with...
  5. Thread: Nurses Week

    by Pete
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    Nurses Week

    In the USA, itís Nurses Week, a time to recognize the nurses who have helped us when we were sick. All of us have had some excellent nursing care associated with our GPA experiences. Two nurses who...
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    Re: Happy Birthdays Thread

    Psyborg

    Hey Bob, wishing you a happy birthday, and many more!!!
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    Re: Coronavirus and GPA

    Here in Ohio, we're in pretty good shape aside from the far right's protests about the stay at home orders. Ohio State, Cleveland Clinic, and some other hospitals are beginning to coordinate testing,...
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    Re: Coronavirus and GPA

    Slight change of subject here, but still germain...

    Iím a month overdue on my routine labs. I go to one of OSUís satellite health centers to have samples drawn. Their system involves registering...
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    Re: Coronavirus and GPA

    I'm not due for another dose of rtx until September/October. I'll ask about the biosimilars (and other possibilities) then.
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    Re: Coronavirus and GPA

    Itís too pricey to hoard at upwards of $20,000 per dose...
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    Re: Coronavirus and GPA

    My wife and I are doing ok. Weíre both prime targets for the virus being in our 70s and being immunocompromised (She has autoimmune hepatitis and takes 75 mg/day of immuran.).

    We go to the grocery...
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    Re: Specialist in or near KY

    annmarie6

    Well, I didnít expect Ohio to pretty much shut down when I last posted on this thread. Iím glad youíre getting in. Hope the delay doesnít cause much grief. OSU canceled/postponed some of...
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    Re: Tinnitus, how can I cope with this symptom?

    Iíve had tinnitus for years and had it before GPA. Itís a constant high-pitched squeal.

    I also had senso-neural hearing loss (thanks to no earplugs while in the army, working in a steel mill, and...
  14. Thread: Bubble Echo

    by Pete
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    Re: Bubble Echo

    I had a heart cath two years ago. They went in through my right wrist. They gave me 5 mcg of fentanyl to relax me. I was coherently awake and watched the monitor while the dye flowed through my...
  15. Thread: Bubble Echo

    by Pete
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    Re: Bubble Echo

    Iíve never had one. Hereís what itís about: https://www.health.harvard.edu/heart-health/what-is-a-bubble-study
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    Re: GPA -> Scleritis and Rituxan anyone?

    For me, getting rtx is almost a non-event. The typical infusion protocol involved a dose of steroid (solumdrol), a dose of benadryl, and tylenol about 30 minutes prior to starting rtx. They start...
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    Re: Specialist in or near KY

    I would expect that you'll be going to Cleveland before April 1. (No foolin')
  18. Thread: My story...

    by Pete
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    Re: My story...

    Hello Smashing!! You've had quite the time of it. I hope you can find a doc with good wegs experience who can get you into a good remission. I'm tagging LisaT and marta who are Canadians. They may be...
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    Re: New Here - Dx question

    Since youíve already been to Mayo (I assume in Rochester), you may want to get an appointment with one the vasculitis docs like Ulrich Specks.
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    Re: Specialist in or near KY

    You can check the Vasculitis Foundationís website. Youíre probably going to find s good specialist at Cleveland Clinic (I see Dr Alexandra Villa Forte there) or Nashville.

    Happy hunting!!
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    Re: I got a 2020 Present!

    I know that blu4runner had a knee replacement last fall, if that helps.
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    Re: Any virtual workout buddies out there?

    Since I got over the ďvirus thatís going aroundĒ, I decided to make some lifestyle changes. Our house is next to one of the community hiking/biking trails, and we live about 1/2 mile from the local...
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    Re: Not a diagnosis I expected

    Youíre in good hands with Dr Villa Forte.

    For me, remission has been pretty much a return to normal. Hope itís the same for you!!
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    Re: Starting Methotrexate

    Iím not sure how quickly mtx induces remission. Itís probably faster than rituximab and slower than cytoxan. Mtx replaced cytoxan in my treatment regimen. My mtx dosage ranged from 20-25 mg/week. I...
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    Re: Not a diagnosis I expected

    Jim the Restless

    Welcome to the club! Iím nine years in following a similar disease onset. Fortunately, I was retired when the disease hit, so I didnít have a job situation to worry about.

    If...
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