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Hi happy camper... Yes it could be the wg or meds or ra better to get diagnosed. I have terrible aches in the limbs every night and I have not been able to figure out why. Theories are it could be a...

Hello Sangye... Nice to hear from you... It has been a while.., hope alls well... I'll check with vdub...

Holy cow! most of them in the east coast...

I could not figure a way to add a pushpin... may be most of the wg's shy ed away cuz they could not figure this either ?

Had heard some research being conducted to identify markers in genes that identify WG activity, in the past, mostly from a doc at stanfords... is thos paper related to that? What is ANCO?

Anyone in the Sacramento region in California? Enabled Poll... hope this works!

In plain english, anyone?

Hi Skip! Sad you are one us! Glad you found this forum! This is a great source for information that you will benefit a lot while to fight the disease. One thing that has immensely helped is to...

Wishing you remain in remission always... :thumbsup:

The first time I got cold after 2 yrs of being dx'd, it kept me busy for about 5 - 6 weeks... it is now at the trailing end... however it was scary... now wegs symptoms, some infection that could not...

Definitely do the biopsy to confirm WG...

Wishing you a speedy recovery Sangye... I just heard of someone who took rtx and is now doing very well indeed... you will do too... you'll be in my prayers tonight...

Hi Deb, welcome to the forum... Agree with all others... you need to get your Dad under a WG specialist as soon as you safely can. I was very sick in the hospital for about 20 days or so... but I did...

Yes my WBC started declining when Imuran was introduced. Had to remove CTX, and they came back up to thier normal range.

I feel sorry for the way you are being treated by the medical system freakyschizogirl. Have you tried another ENT? I am beginning to realize that you need to go see an ENT who has an experience with...

Happy New Year to all my Weggie Brothers and Sisters, friends and families... may this New Year bring the best of health, happiness and prosperity to you all. Have a very safe and healthy New Year......

Neurological involvement concerns me.

Hi MinneapolisMark, welcome to the forum... I have been lifting weights and it certainly seem to help, slow but surely. I incline yje treadmill to 12deg but walk at 4MPH for 20 mins. Yeah, I sweat a...

Yes he did do it for the 1st half of the 1st year. He said that is how he treated a lot of his Lupus patients. My Rheumy at Stanford too was surprised just as you are. But I was at the tail end when...

Thanks Julia... if you ever come to know what angle measures were, could you please post them in this thread? in the mean while I will keep researching.

Julia hi, Did you do the Visante OCT test? any idea what your angles were? Oh, and what drops are you using?

Oh and good news! I am seeing Dr. Sharon Chung this Thursday...

According to my rheumi... after every pulse (once every month) it would allow my rheumi to drop my oral intake by 5mg...

On the lighter side... my wife needs to know this "High dose pred can...

Natalie Hi, was there a way to detect the granulomas around the optic nerves? If so then we should all be regularly checking for this condition no? Also was a Visante OCT done to diagnose Closed...

Thanks will do, elephant.

I still have the question if it is advisable to do the laser Iridotomy with 9.8 deg. of closed angle. Has anyone gone through this surgery? What has the experience been?

Thanks Jan... I just got a call from Dr. Chung this afternoon, she has asked her staff to get me in next week. So that is the bright side of the day. My sister lives in NJ and I might see if I can...