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  1. Replies
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    Boy...3 flares in 5 years. Whoa!

    Boy...3 flares in 5 years. Whoa!
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    Quick update will receive my last treatment...

    Quick update will receive my last treatment Monday I have had no reaction other than a scratchy throat. Let u know soon. BTW...Insurance still wanted to know if Cellcept put the dog in slumber why...
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    My doc made a great case as to why I should get...

    My doc made a great case as to why I should get RTX and I am good to go.
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    Pete that was 4 infusions...$80K total?

    Pete that was 4 infusions...$80K total?
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    Gosh yes Sangye :thumbsup:

    Gosh yes Sangye :thumbsup:
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    No RTX treatment yet...my best guess is what I...

    No RTX treatment yet...my best guess is what I suspected if my meds were increased from 2000 to 3000mg Cellcept and a higher Pred and my numbers stabilized (chemical remission) then they want more...
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    We'll today my numbers started going down in fact...

    We'll today my numbers started going down in fact no more blood...insurance is wanting more lab with increased cell crept to see if I go back in remission. Weird huh! Right I am scheduled to start...
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    I will keep you informed I believe my infusion...

    I will keep you informed I believe my infusion will start October 6....
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    Well after six good years...I relapse :predrage:!...

    Well after six good years...I relapse :predrage:! I was on 2000MG of Cellcept and between 1MG-5MG of Prednisone for almost 3 years, the last 2 years 1mg of pred. Last month I spent 2 weeks in...
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    A couple of things you be aware but always...

    A couple of things you be aware but always consult your physician.

    Cellcept is recommended up to 2000MG daily but you can go up to 3000MG daily if your doctor feels its best to control the...
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    Phil...dude hoping for a speedy recovery and once...

    Phil...dude hoping for a speedy recovery and once you are back on your feet my friend you WILL need to come down to South Florida. I will definitely feed you rice, beans, pork, yucca and bread and...
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    Phil...dude hoping for a speedy recovery and once...

    Phil...dude hoping for a speedy recovery and once you are back on your feet my friend you WILL need to come down to South Florida. I will definitely feed you rice, beans, pork, yucca and bread and...
  13. This is maybe how they see it..."can you work in...

    This is maybe how they see it..."can you work in any/occ not just own/occ and the answer for the majority of Weggies is yes!" With the fraudulent abuse the OASDI has taken the last 5 years it seems...
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    http://www.wegeners-granulomatosis.com/forum/attac...

    http://www.wegeners-granulomatosis.com/forum/attachment.php?attachmentid=2030&stc=1&d=1399589362

    Is this how you feel???
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    Phil...I know living in Canada is hard to avoid...

    Phil...I know living in Canada is hard to avoid cold weather but it seems some warm humid air may help a long way...when you ever decide to visit South Florida/Miami, which has a lot of warm hot...
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    Phil...as you know I have been a member longer...

    Phil...as you know I have been a member longer than most of any on this site. In fact I think when I became a member there were less than 50 active members. But I do recall we could joke about most...
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    Phil .hope you have a speedy batman like recovery

    Phil .hope you have a speedy batman like recovery
  18. Alysia...I have been good so far... in chemical...

    Alysia...I have been good so far... in chemical remission the last four years with no blood indicators. I have had occasional joint pains from time to time but everytime I check my Sed Rate its been...
  19. Happy 5th Anniversary Letter to my BFF Wegs!

    Dear Wegs,

    Its been five years since you and I met and have become partners for life. You have definitely brought many tears (and not joy) the last five years. It is with great enthusiam that I...
  20. Thread: Lightwarrior

    by RCOSSIO
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    Phil can't complain lucky that Cellcept has...

    Phil can't complain lucky that Cellcept has worked well and i have been reducing, probably by next year I will be on no meds. Some minor occasional joint pains but my blood work has been normal for...
  21. Thread: Lightwarrior

    by RCOSSIO
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    Well the crazy Cuban has not been in the forum...

    Well the crazy Cuban has not been in the forum for quite some time and I am happy to see all new members...it was just a few members when I joined 5 years ago. I am sad to see this post from...
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    I have been on Cellcept for 4 years and have...

    I have been on Cellcept for 4 years and have found it beneficial. I do agree with others in the forum that the Roche Brand is better than some generics. In fact, my Rheumy had a patient that was...
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    60MG of pred....WOW! That's high....I received...

    60MG of pred....WOW! That's high....I received 60mg of pred when I was first diagnosed. Hope RTX does the trick!
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    Hey Light...did your other treatments stop...

    Hey Light...did your other treatments stop working for you? Why RTX now, new flares not controlled?
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    In case you run out :w00t: ...

    In case you run out :w00t:

    http://ts1.mm.bing.net/th?id=i.4779290010583720
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