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Type: Posts; User: Chris G

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  1. Replies
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    Rose - I don't have kidney involvement, so I...

    Rose - I don't have kidney involvement, so I can't address that issue. But I am also on 750mg cellcept twice daily. Because of the cellcept, I am monitored monthly for low white count. The labs...
  2. In my case, of course my assumtion is that the...

    In my case, of course my assumtion is that the vertigo was due to wg ear involvement - of which I have all sorts. It's just nice to think that I could get some relief from a simple head tilt or...
  3. I've also heard them called "ear crystals". A...

    I've also heard them called "ear crystals". A friend of mine (non weggie) described them to me recently. She had them a while ago, and the ENT did some kind of magic head positioning with her...
  4. If your question is.....why do there seem to be...

    If your question is.....why do there seem to be so many different dosing guidelines........part of the confusion may be due to the fact that the article is not related to wg. The disease they're...
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    I'm so sorry you've lost so many people close to...

    I'm so sorry you've lost so many people close to you, in such a short period of time. I know how difficult that is. Compounded by the dreadful news of your disease, it must have been overwhelming. ...
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    I'm very concerned that your doctor said you...

    I'm very concerned that your doctor said you don't need the tpmt test prior to starting imuran. It's considered routine prior to taking imuran. The enzymes Nicole spoke of, are measured by that...
  7. Thread: new

    by Chris G
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    16,754

    Welcome Skip. Fatigue is my greatest...

    Welcome Skip.

    Fatigue is my greatest complaint these days. Even though I feel like the disease is being controlled, for the most part, the fatigue never goes away. I've not achieved remission...
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    I couldn't take imuran either. But for me it...

    I couldn't take imuran either. But for me it caused gastrointestinal issues. What you describe sounds like an allergic reaction. Maybe you should take some benedryl to reduce the allergic...
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    Yep, it happens to me now and then too. Looks...

    Yep, it happens to me now and then too. Looks like someone jabbed a knife in the white of my eye for a day or so. It's happening less frequently now that my meds seem to be working better.
  10. When I was taking mtx I tried not to interact...

    When I was taking mtx I tried not to interact with people at work because I knew my words weren't coming out correctly. I was also forgetting that I'd had conversations with people. It was really...
  11. These cognitive symptoms are the exact reason I...

    These cognitive symptoms are the exact reason I told my doctors I wanted to stop taking mtx. I practically demanded it. I was in such a fog every day that I could not complete simple tasks. About 2...
  12. Thread: Dreams???

    by Chris G
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    My dreams were also much more intense while I...

    My dreams were also much more intense while I took mtx. Really noticeable the night I dosed, and the next night as well. Sometimes violent!
  13. Thread: Cellcept

    by Chris G
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    Thanks guys. Good info. I'm still dragging my...

    Thanks guys. Good info. I'm still dragging my feet. I haven't picked up the script yet. Not sure how to work it in my schedule - twice a day sounds like a real pain! I take most of my meds with...
  14. Thread: Cellcept

    by Chris G
    Replies
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    2,469

    Cellcept

    I saw my docs today, and they feel I need an additional drug to knock wg down - I agree because I didn't make it 6 months with the 1st round of rtx, before symptoms started creeping back. I'm to...
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    That may be why my doctor wanted to give me four...

    That may be why my doctor wanted to give me four doses, but the powers that be decided two will be enough. Or perhaps they do not think twenty stone (280 pounds or 38 kilos) to be overweight!

    I...
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    Here in Michigan, I'm LOVING this crazy warm...

    Here in Michigan, I'm LOVING this crazy warm weather!!! But, I'm sorry it's reeking havoc on your nose, etc, mama.

    I'm heading your direction soon, Richard!!! Ft. Meyers to be exact....... and...
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    Hi Anne! I had 2 rtx infusions last May,...

    Hi Anne!

    I had 2 rtx infusions last May, and 2 rtx infusions in December. I felt weggie-great from Mid-June to late November, and was able to taper pred from 25mg to 10mg. But late November,...
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    I'm glad that they increased her mtx to 20. That...

    I'm glad that they increased her mtx to 20. That might help, but it will take 3-6 weeks to know. 7.5mg pred is a very low dose if its purpose is to control symptoms. It's probably not going to...
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    Did they increase her meds Maria?

    Did they increase her meds Maria?
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    Reet, I'm so sorry about your dad's passing. My...

    Reet, I'm so sorry about your dad's passing. My thoughts are with you.
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    When mtx is used as a cancer treatment, the...

    When mtx is used as a cancer treatment, the reason it works is BECAUSE it sucks the folic acid from the body (the cancerous cells I suppose). When mtx is used for WG, the folic acid depletion is not...
  22. Amazing phil! I'm so very very happy for you!!! ...

    Amazing phil! I'm so very very happy for you!!!

    Gonna go view the video now. Yep! American and i want in on your fun!
  23. I don't know the answer as to whether this will...

    I don't know the answer as to whether this will help us. But I thought I'd share what my ENT told me yesterday. He said that we're now in the "mab" age...... with the advancements and research in...
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    Mtx leaches the folic acid from our bodies....

    Mtx leaches the folic acid from our bodies. That's why we need the suppliment. It does help prevent irritation and sores in the mouth and gastrointestinal system. I checked with my doc before taking...
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    When I was taking mtx, I noticed that extra folic...

    When I was taking mtx, I noticed that extra folic acid helped a little bit. You should already be taking it already. You could safely double your folic acid dose on Saturdays and Sundays, and see...
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