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  1. Thread: Transplant

    by annekat
    Replies
    226
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    20,063

    Re: Transplant

    Oh, rats! I'm sorry to read that. Hoping and praying things turn around for the better again. You must have the patience of a saint, putting up with these inconsistent results. Hang in there!

    Sent...
  2. Replies
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    Re: 20 year old son

    Sometimes labs take some time to catch up with symptoms, but in my case, with flares, the increased inflammation showed up in labs pretty quickly. Everyone is different.

    Sent from my...
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    Re: 20 year old son

    I had both headaches and night sweats at the beginning of when WG escalated and I was getting diagnosed. Both of those disappeared quickly with aggressive treatment with Cytoxan and prednisone....
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    Re: 20 year old son

    PS the advice from me2 about diligent nasal/sinus rinsing was good, and also his mention of Alkalol. I have used it, it is all herbal and natural substances, and it can be therapeutic and soothing,...
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    Re: 20 year old son

    I'm sorry you had to repeat about your son's headaches, as I didn't show adequate sympathy for that. It must be disheartening to have him not sounding very good on the phone. Headaches are troubling...
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    Re: 20 year old son

    Nice to hear from you, Aneinu, and that things are going pretty well for your son. I can't add to what others have said about symptoms of flares. They are right. Big congratulations on your son's...
  7. Thread: Transplant

    by annekat
    Replies
    226
    Views
    20,063

    Re: Transplant

    Thanks, Pete, for the update, and I'm pleased to hear that your kidney numbers are now improving. Also that your dad is doing well, and that you took a vacation with your wife. Keep up the good news,...
  8. Thread: Transplant

    by annekat
    Replies
    226
    Views
    20,063

    Re: Transplant

    Good question, Alysia. I had thought he had Liked something I wrote on the 28th, but just looked, and it was the other Pete. I know his username is Gilders. So now I'm a little worried, too. I hope...
  9. Re: My Rhumy and I started me on High doses of THC and CBD oil

    Being from a state where THC is legal, I don't need a prescription. I also don't need to use a lot of the product. I only use it at night, and not always. If I use too much it keeps me awake. So I am...
  10. Thread: Transplant

    by annekat
    Replies
    226
    Views
    20,063

    Re: Transplant

    I've been wondering, Pete. Using Tapatalk I am not always informed of new posts. This journey of yours just keeps getting more complicated! Dang. It sounds like the docs are well on top of the ins...
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    Re: Polymyalgia rheumatica

    Always good to learn about other autoimmune diseases. I'm glad your sister is doing better on the prednisone. I hope she doesn't need it long term or in high doses.

    Sent from my MotoE2(4G-LTE)...
  12. Thread: Transplant

    by annekat
    Replies
    226
    Views
    20,063

    Re: Transplant

    Thanks for the update, Pete... I'd been wondering a little. It seems like there's no end to the possible complications, even if not serious but still troubling. If the docs think you are generally...
  13. Thread: Mags

    by annekat
    Replies
    7
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    206

    Re: Mags

    Pete, that seems very worthwhile to me, for one. I know about the ear crystals, and think I may have that problem along with other types of vertigo such as Meniere's disease (my ENT's suggestion). I...
  14. Thread: Mags

    by annekat
    Replies
    7
    Views
    206

    Re: Mags

    This is all very interesting, as I have had balance issues, including episodes of vertigo, in the last several years, since being dx'ed in 2011. Sometimes it is just not being able to walk straight,...
  15. Thread: Transplant

    by annekat
    Replies
    226
    Views
    20,063

    Re: Transplant

    It's understandable that you would be concerned about next weeks test. We will keep our fingers crossed and knock on wood, along with praying and positive vibes. I hope the result is favorable. Great...
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    Re: Happy Birthdays Thread

    Have a great birthday, Natrice!!!

    Sent from my MotoE2(4G-LTE) using Tapatalk
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    Re: Hello from another new member

    Hi, Tricia,
    I can't add much to the above, but just found your post and wanted to welcome you to the forum. My WG/GPA started out like yours, with ear infections and sinus infections, which in my...
  18. Thread: Transplant

    by annekat
    Replies
    226
    Views
    20,063

    Re: Transplant

    Me, too!

    Sent from my MotoE2(4G-LTE) using Tapatalk
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    Re: ear issues with Wegener's

    Hi, Doris,
    Welcome to the forum, but sorry you have a reason to be here. I wrote a long reply a couple of days ago but it somehow got lost and then I couldn't find your post. Probably because I use...
  20. Thread: Transplant

    by annekat
    Replies
    226
    Views
    20,063

    Re: Transplant

    More power to you, Pete!

    Sent from my MotoE2(4G-LTE) using Tapatalk
  21. Thread: Transplant

    by annekat
    Replies
    226
    Views
    20,063

    Re: Transplant

    What a complicated and convoluted time period this has been for you! Thoughts will be with you until, and beyond, the time everything has been declared normal and you can resume your life as before....
  22. Replies
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    9,816

    Re: Happy Birthdays Thread

    Thanks, Alysia, I was confused because the tag didn't turn blue in my original post after I sent it, at least on my end. But I won't worry about it.

    I won't insist on picking a birthday for you....
  23. Replies
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    9,816

    Re: Happy Birthdays Thread

    PS, Alysia, how do you tag people on here with an @ symbol? I tried it with you and it didn't work. Maybe because I use Tapatalk?

    Sent from my MotoE2(4G-LTE) using Tapatalk
  24. Replies
    111
    Views
    9,816

    Re: Happy Birthdays Thread

    Well, Alysia , maybe we will just have to pick a day to be your birthday. Maybe the same day as Phil's would be a good one. Then you two can celebrate together.

    Sent from my MotoE2(4G-LTE) using...
  25. Replies
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    9,816

    Re: Happy Birthdays Thread

    Yes, Gilders, I'm afraid Alysia will keep her birthday a secret. I'll bet someone knows it, and we may have to do a little detective work.

    Sent from my MotoE2(4G-LTE) using Tapatalk
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