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Type: Posts; User: Jax

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    THANKS ME2! I'M very fortunate for my family....

    THANKS ME2! I'M very fortunate for my family. Especially my husband. He hasn't run for the hills yet since I've been diagnosed. And that is a great option going to a dental college. Insurance doesn't...
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    Sometimes validation is everything. Especially...

    Sometimes validation is everything. Especially when we suffer on a daily basis and connecting the dots isn't as simple as we'd like. If I want good care, I need to travel to oahu, the main island....
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    Thanks Debra! It helps knowing I'm not alone. I...

    Thanks Debra! It helps knowing I'm not alone. I lost a dozen teeth and have 6 left in bad shape. It doesn't help at all that because of wegeners, when I catch an infection of some kind, nausea and...
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    thanks Arleta ��

    thanks Arleta ��
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    Lost lots of teeth from prednisone

    Quick history : diagnosed with GPA Jan 2014 with biopsies taken from both ears during mastoidectomies. Have been on so many of the pill therapies (cytoxin, methyl, imuran, prednisone 100+mg now down...
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