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What a jerk! I gained 80 lbs with my last pregnancy and was unable to lose the last 40 lbs or so. I tried several diets after no luck with simple calorie/fat counting and exercise. Weight...

I was scoped last year and was doing well about a month later but lately having these choking feelings in my throat. Glad to hear yours was your stomach, maybe that's all this is too. We know my...

Yes, it literally feels like someone has their hands around my throat and I'm being strangled. Not enough that I can't breathe. When looking down to read, type, watch TV in bed, it's much worse but...

What does stenosis feel like? My concerns dismissed (as usual) by the pulmonologist when I asked. I just feel like I am being strangled by someone's hands around my neck. It makes me feel like I...

I had to edit this because I pulled out my notebook and found what I had. It was intrahepatic cholestasis of pregnancy and not HELLP. Similar with the liver enzymes being off but very different...

My first symptom was my eye swollen shut but I think I am similar to a lot of people on here that an autoimmune disorder was pretty much the LAST thing that crossed anybody's mind. In my case, it...

Danell you're my hero!

I called this morning and explained my situation of having no known kidney involvement and ANCA-negative. I started with an admin asst, who put me through to the kidney...

Thanks so much - I'll give them a call and see what they say. I"m ANCA negative and some confusion of whether it's even wegs or some other vasculitis (by inexperienced docs though). Not that I want...

My dry eye developed well after mine started, easily years after. But, my eye was so severely swollen that it was shut or nearly shut for so long it would have been hard to dry out! When the...

Do you know if they're treating just patients with kidney involvement there? I've had bad luck with UNC rheumatology and still waiting for my JHU appointments but really struggling with symptoms...

When I was diagnosed I was NOT to search info out because it didn't apply to me. I supposed it was true to some extend because I maintained for many years on just antibiotics. I do wish I'd...

Sounds so similar to mine... The biopsy actually didn't confirm wegs, which has been the biggest uphill battle for me. Even more frustrating is being minutes away from two major university hospitals...

thanks chris, well explained about the pred - any yes, I am waiting to get into the JHU vasculitis center. They've got all my records but have not been given an appointment yet. It was so delayed...

They biopsied just above my eyeball with an attempt for the lacrimal gland. It ended up just being a bunch of inflamed tissue that wasn't any particular part. My eyeball itself has no involvement...

Can you explain what this means... for a person who has yet to get proper treatment... Not doubting you, just very curious. The rheum I've seen so far have wanted me on pred plus bactrim. The one...

My wegs eye is horribly dry and I use artificial tears constantly, the other eye is fine. I have to cycle between a few different brands because they seem to lose effectiveness after a few days. ...

I have started developing very blurry vision, I think from the pred. It's been coming on slowly over the last few weeks and am to the point now where I think I need to get some reading glasses. ...

In my case, I was 100% healthy until catching a nasty head cold from someone who'd been overseas. All of us coworkers got pretty sick from it, presumably because we had no immunity to that...

Yes, totally agree. I'm not an angry person, more of a pouty crybaby type but know I"m causing unnecessary stress on my family who has to see me like this. I had a long talk with an friend today...

My vasculitis hasn't quite been pinned down specifically to wegs yet but I was on Septra (Bactrim) after a biospy showed what was goign on with my eye. It took several months but it went into 100%...

Just got to vent on here because hubby's just running out of patience for my mood swings lately. I got impatient with my quest for a JH appointment and called. I was told they've received my...

I feel more angry about stupid things than I do anxious but definitely feel both. What has helped me the most is to slow down a second and think hard about if I am really feeling this way, or if it...

Thanks for the info Sangye, and everyone. I am almost thinking that I was so overwhelmed yesterday that it is very possible I was imagining half-palm numbness as opposed to full-palm numbness....

It's weird. My arms are fine now, pinky and ring fingers on both hands plus both palms are totally numb, soles of feet are tingly and numbing, electric sensations down back of legs. I'm getting...

This site has been such a blessing and you're all full of such great info and insight. I really appreciate it! And, yes, I'm hoping to be in at JH within a month.

Still on the 30 mg pred and have...