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Type: Posts; User: Ladyleeza77

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    Thank u ill these out!

    Thank u ill these out!
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    Thank u so much!!

    Thank u so much!!
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    Doctor needed...

    Does anyone know a specialist in WG or vasculitis in pa? Ive heard of Dr Merkel..but i dont think hes a pediatric..maybe through chop ..right now im with hershey penn state hospital...but im not...
  4. Thread: Remission?

    by Ladyleeza77
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    Thanks for all the info..this forum is really...

    Thanks for all the info..this forum is really great..ive learned and got more info on here than since ive joined!
  5. Thread: Remission?

    by Ladyleeza77
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    Hey gliders.. When you go into remission you...

    Hey gliders..
    When you go into remission you mentioned flares up snd involves kidneys..how?? What are your symptoms? My son has had UTI symptoms on and off but comes up negative when they test...
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    Thats good to hear..

    Thats good to hear..
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    I heard Rituxan was really bad side...

    I heard Rituxan was really bad side effects...hope all goes well with you...good luck!!
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    Ill look into that..thanks

    Ill look into that..thanks
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    I dont care how far i have to drive..

    I dont care how far i have to drive..
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    Is he pediatrics??

    Is he pediatrics??
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    His doctor is a women April Bingham...

    His doctor is a women April Bingham...
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    I have a script i have to take him...its urine...

    I have a script i have to take him...its urine and bun creatine...some other stuff...im going tomorrow..
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    He was on predisone in the begining after tge...

    He was on predisone in the begining after tge mass for about 6 months tgen went on MTX and started weening off peedisone completely...thanks for the link...i feel like its so rara they dont know much...
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    He is seeing a rhuematologist whom is with...

    He is seeing a rhuematologist whom is with allentown and hershy..im in the poconos. He was in a wrestling match , got half way knocked out, coukd not walk and went to ER.. and they took a ct scan to...
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    Hello from PA....

    Hello, my son was diagnoised with WG a year ago, by an accidental finding of a mass on his lung. We think he got it from his ringworm medication. Hes had UTI symptoms but has had urine tests and only...
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    Thank you so much!

    Thank you so much!
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    Iam new and my son who is now 11 was diagnoised...

    Iam new and my son who is now 11 was diagnoised with WG December 2013, we think from ringworm medication. He had a mass removed from his lung, which was accidently found. He was on predisone for 6...
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