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Thank You Sangye and Al. How are you Sangye?.

Well done Marta, for raising people awareness of AI illnesses, also mama 2005 and her daughter. My nieces daughter has Ehlers -Danlos-syndrome which effects her gut mobility and is peg fed and also...

I haven't posted for a long time, problems logging onto the forum and also other issues. I was diagnosed with overlap connective tissue disease. So not officially a weggie, althrough i was anca...

Hi Maria, Sorry i have been along time repling my head all over the place at the moment. I am taking 15 mg of methrotate at present and the first wek i didn't feelto good but now ok. Yes Sangye is...

My sincere condolences to you all, i hope these messages posted will bring you some comfort to you all. Jack gave me some good advice when i first jioned this forum, he was a wise man and not one to...

HI Michelle, the deppression i have been suffering from wasen't all down to being unwell a lot of other things have been going as well. And yes i couldn't fully agree with more that there a lot of...

Hi Maria, Sorry i haven't answered your post as i have had been very deppressed and haven't been able to comunicate with people very well. Yes i was Anca pos at one time ana pos. I have been...

Today i recieved a letter from my rheumatologist he has heard that i wanted a second opinion and he has now has reffered me to Addenbrooks, also stating in the refferal that he looks forward to...

Jack i don't think it is hereditary but i have an auto immune disease ?wegener's, my son when he was 29(he's 39 now) was in hospital with schonlein henoch purura, he has had no reoccurance of the...

:thumbup:Count me in Marta i've always wanted to visit Jasper, i was going to visit there quite a few years ago with my brother but sadly he become ill and passed away. Glad Phil had a lovely time...

No Jack, i live in Romford, essex, but thank you for asking. I spoke to the nurse again this pm who attends Dr Jayne clinic and she Phoned my gp and ask them to fax the refferal, still she received...

Hi berylj, sorry to hear about your kidneys, Glad despite the move you are still able to attend addenbrooks. My gp reffered me last week but when i phoned addenbrooks they haden't received it, but...

Nice picture Marta, it's lovely Phil made it to see you hope you all have a lovely time, don't over do it Marta.

Thats good Manalolana that he is keeping a close eye on you(now Geoff be quiet!) :tongue1:

Yes Geoff really disappointed to have to miss this gathering and talk, that nice you get to ask a question and Dr Jayne answers. don't even get that with my appointment with Rheumy!!

Sorry your not to good today Dee, so glad you gave them what for, i really must get a hoodie.

Good to hear Manlolana, I knew pred effected the eyes, but didn't know they made them dry, glad your eyes are not so painful now.

Hi Berylj, Thanks for the mention, my gp sec rang last week to say that my gp is reffering me to Addenbrooks. It's good your gp was so supportive in reffering you. Was your second biopsy positive?...

Hi Geoff, I thought i'd let you know, on the Stuart Strange site, Dr David Jayne is giving a four hour talk on vasculitis. This is being given at at a hotel in cambridge on sunday 26th. they have...

What's that Geoff, oh you have decided to go to a local Rheumy, i wonder why:w00t:

Hi Rachel, Sorry to hear that you had such a rough ride with all this, i myself have been on plaquenil and low dose sreroid for over year now while waiting a diagnoses. What i can say is please take...

Hi Jaha, Glad you are feeling better, you catainly have had the run around before you finally got your diagnoses. Yout right on track through, being a member of this forum with first class advice.

Welldone Jack for taking those sreps unaided, sorry to hear Sangye that you don't have many good days, this disease certainly takes it's toll on people. More hugs coming your way:hug1:

Thanks Geoff, I will keep in touch, i got a letter to go for my 24 tape next thursdayand see what they make of the tacycardia. So i will be all wired up and i have got to keep a diary of what i'm...

Aloha Manalolna, It's hard when you are a long way from home when ill, i'm glad you have good friends that are there for you. Dip yout toes in Waikkaki sand and gorgeous sea for me, oh those were the...