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Type: Posts; User: Angela

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    Re: Azathioprine - Mycophenolate mofetil

    Further update :smile1:

    Went along to see my drs again at Renal Clinic. On the Myco now for a couple of months and My Anca is still rising.
    Also white cell count is a bit too low. They are...
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    Re: Azathioprine - Mycophenolate mofetil

    Thanks everybody for your advice and input. :) Very much appreciated. :) :) It is good to compare treatments available and outcomes/side effects.

    Saw my Dr. (Renal) They are leaving me on the...
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    Re: Azathioprine - Mycophenolate mofetil

    Have Somac which I guess is similar.
    Seeing Dr tomorrow. See what happens. Guessing He will leave me stay on the Myco for a while :(

    Angela.
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    Re: Azathioprine - Mycophenolate mofetil

    Hi everyone.

    Update - Seem to be getting a lot of heartburn constantly from the mycophenolate. Eating and even drinking water brings it on. Read on info that came with medication, not to maybe...
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    Re: Azathioprine - Mycophenolate mofetil

    Thanks for your reply bdawg
    will look out for the mood swings.
    Had an interim blood test this week but won't know the results until I see the doctors in couple weeks
    so far have had some bits and...
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    Re: Azathioprine - Mycophenolate mofetil

    Thanks Donnak

    i have started on two tablets per day. (1000 mg)
    So far have had a bit of Gerd and chest pain this morning for about two hours.
    Sometimes with Wegeners, you wonder if its the...
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    Re: Azathioprine - Mycophenolate mofetil

    Hi gilders,

    Thanks so much for your reply and relaying your experience with this medication.
    I start on it tomorrow morning - only 1000 mg per day though taken twice a day.
    Will look out for...
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    Re: Azathioprine - Mycophenolate mofetil

    Thanks Alysia for replying. Very much appreciated.
    And yes, it seems that our medication options all have many unwanted
    nasty side effects. I wish I could go off all medication and have a break...
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    Azathioprine - Mycophenolate mofetil

    Hi. Angela from Australia here. Was diagnosed with Wegeners Gpa (severe)4 years ago or so. Had cyclophosamide infusions for first 6 mths or so alongwith usual high dose prednisone. Since that...
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    And whats with my face lol. I look in the...

    And whats with my face lol. I look in the mirror and don't recognise myself. Probably the prednisone again !!
    My face is now rounder fuller swollen. I did have high cheek bones and hollows....
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    Excessive Sweating

    Anybody else have trouble with excessive sweating?

    My head and hair wet continually with sweat. I do understand that it is a minor problem but it looks and feels terrible. Washing my hair daily....
  12. Thread: My doctors

    by Angela
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    My doctors

    I have to say that the two specialists that are treating me at the moment are simply amazing. I am a patient at my local public hospital here in queensland so the treatment is free.

    All the...
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    Thank you Pete for the welcome Without going...

    Thank you Pete for the welcome

    Without going into too much detail here on introducions section my Wegeners involves kidneys possibly lung and all the sinuses ears both the skin splotches swelling...
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    New member from Australia

    Hi my name is Angela and I am from Queensland Australia. I just wanted to say g'day. Just recently diagnosed with Wegeners in November. Glad to find this place. Never ever heard of my disease...
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