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Type: Posts; User: Arleta

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  1. Replies
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    Re: Imuran Side Effects

    I have taken Imuran for about 9 years with no big problems. How I feel each day varies. Sometimes I do have some of the issues that you list, but most of the time I do ok. It is a maintenance drug...
  2. Thread: Dsap

    by Arleta
    Replies
    4
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    344

    Re: Dsap

    There's not much you can do. I see a dermatologist twice a year. She checks for precancerous spots and recommends using a moisturizer. I've tried a couple prescription things, but nothing really...
  3. Thread: Dsap

    by Arleta
    Replies
    4
    Views
    344

    Dsap

    Does anyone else have the rare skin condition called DSAP? I've had it for a long time...probably 30 years....way before Wegener's. It has gotten worse since Wegener's, though. I was reading an...
  4. Thread: Insomnia?

    by Arleta
    Replies
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    1,533

    Re: Insomnia?

    Thanks, Masha!

    Sent from my SM-T800 using Tapatalk
  5. Thread: Insomnia?

    by Arleta
    Replies
    15
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    1,533

    Re: Insomnia?

    Thank you for your response! Unfortunately, these are things I have been doing for years with no help. I've also been under a doctor's care for several years, had a sleep study done, etc. ...
  6. Re: My hands are losing circulation while sleeping

    I experienced this one time recently, also while in bed. It also went away upon moving around. I am not on any prednisone at this time. My feet and up my legs to my knees are always numb, toes and...
  7. Thread: Fructured Toe

    by Arleta
    Replies
    31
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    3,341

    Re: Fructured Toe

    I once had an allergic reaction to contrast dye that presented like your symptoms. They had to flush it out of my system. Perhaps you are allergic to the pain med they gave you.

    Sent from my...
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    Re: My first flare since diagnosis

    So sorry to hear this. I also take Imuran, but 150 mg per day. I have tried to lower it a couple times, but symptoms come back. Next month will be my 10 year anniversary of the on come of symptoms....
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    Re: Sinus Congestion

    I use Flonase. It works well for me. I tried to stop using it during the summer, but I got clogged up at night.

    Sent from my SM-T800 using Tapatalk
  10. Replies
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    Re: A Tiredness Upon Waking And At Night:

    My neurologist had me get a Fitbit about three years ago when I complained of poor sleep. I have tried all the usual things that help promote good sleep.... no caffeine, cool bedroom, limit screen...
  11. Thread: Joint Pain

    by Arleta
    Replies
    5
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    855

    Re: Joint Pain

    I have taken Cymbalta for joint pain (knees mainly) for several years. Nothing else worked---injections, medications. I still have some pain, but it helps.

    Sent from my SM-T800 using Tapatalk
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    Poll: Re: Epstein Bar Virus Curiosity

    No

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  13. Replies
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    Re: Tips or tricks for a cold?

    Thank you for the work you are doing there. We have a neice, her husband, and 3 small children who lost their home in Santa Rosa.

    I have had the most success when I use a product that contains...
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    Rachel, I have taken Imuran since going off...

    Rachel, I have taken Imuran since going off cytoxin. I lost most of my hair when on cytoxin, but have had no hair loss with Imuran. I have been on it about 8 years now with no significant side...
  15. Thread: New!!

    by Arleta
    Replies
    9
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    1,070

    Welcome, Mandy! Hope you will find friends and...

    Welcome, Mandy! Hope you will find friends and helpful information here! We are in it together!
    Arleta


    Sent from my SM-T800 using Tapatalk
  16. Replies
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    Thanks for the info. I will check with my...

    Thanks for the info. I will check with my rheumi!

    Sent from my SM-T800 using Tapatalk
  17. Replies
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    6,064

    Wow! You got a shingles shot? I thought we...

    Wow! You got a shingles shot? I thought we couldn't get that since it is a live virus.

    Sent from my SM-T800 using Tapatalk
  18. Thread: Sick & Tired

    by Arleta
    Replies
    89
    Views
    6,752

    God be with you as you search for answers and...

    God be with you as you search for answers and solutions!

    Sent from my SM-T800 using Tapatalk
  19. Replies
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    I was actually diagnosed 8 years ago. At this...

    I was actually diagnosed 8 years ago. At this time I am doing pretty well, all things considered. I have some permanent damage from the bloodclots which affect my legs (swelling) and other things...
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    It was to recover from Wegener's. I had a hard...

    It was to recover from Wegener's. I had a hard onset of it. Started with what I thought was a cold and then traveling arthritis. Then I became really out of breath and I was coughing up blood. ...
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    I was a teacher when I became sick and was...

    I was a teacher when I became sick and was diagnosed. I was on medical leave for 5 months, but went back and taught for 6 more years while on Imuran. At that point I was retirement age. I got...
  22. Thread: Sick & Tired

    by Arleta
    Replies
    89
    Views
    6,752

    I have no answers, but wish you peace as you...

    I have no answers, but wish you peace as you continue to search for health.

    Sent from my SM-T800 using Tapatalk
  23. Thread: stress

    by Arleta
    Replies
    7
    Views
    757

    The concensus is a resounding YES to stress! 😥...

    The concensus is a resounding YES to stress! 😥

    Sent from my SM-T800 using Tapatalk
  24. Thread: Odd Test Result

    by Arleta
    Replies
    8
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    784

    Glad you're still alive with those numbers!! ...

    Glad you're still alive with those numbers!!

    Sent from my SM-T800 using Tapatalk
  25. Replies
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    New symptom? Onycholysis?

    Hi folks! Has anyone developed onycholysis? It is the separation of the nail from the nail bed. I have developed this on several fingernails on both hands. I looked it up on he Internet and it...
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