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Type: Posts; User: Al

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  1. Interesting paper, Jane--thanks for digging it up...

    Interesting paper, Jane--thanks for digging it up and sharing it!

    There is no question that WG is "genetic", in the sense that many genes are involved. The only question is whether it is "genetic"...
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    Yes, Betska, a "superbug" could trigger a flare,...

    Yes, Betska, a "superbug" could trigger a flare, but then again, a plain old ordinary bug can do the trick as well. Indeed, the presence on an infection and the onset (or recurrence) of disease are...
  3. Thread: New to site

    by Al
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    By all means, Betska, eat well. And bey that, I...

    By all means, Betska, eat well. And bey that, I don't mean just eat good stuff. For humans, meals mean far more than ingesting food. They are an important part of being social beings--which means...
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    For the record, Sam, a "common cold" is, in fact,...

    For the record, Sam, a "common cold" is, in fact, a viral infection. it can be one or more of many viruses, but usually it is a rhinovirus. The human immune system knows this bug quite well, so...
  5. Thread: Imuran

    by Al
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    Goosey--Imuran (azathioprine) is sometimes...

    Goosey--Imuran (azathioprine) is sometimes associated with digestive issues, and there are some who have an insufficiency of the liver enzymes that process it. But, so far as I know, it is not not...
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    Sangye, I have to take exception to a few points,...

    Sangye, I have to take exception to a few points, so I will respond directly here.

    I suggested the ANCA test first for just the reason that Hubby provides: Doctors are human. Call us humans the...
  7. Thread: New to site

    by Al
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    Betska, I tried to answer some of your questions...

    Betska, I tried to answer some of your questions in your other thread. First, though your creatinine numbers make no sense to me (normal is less than 1.2; 2 or higher is very troubling; and past 4...
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    Often you see demographic descriptions of the...

    Often you see demographic descriptions of the "typical" Weggie, Betska: upper middle-aged male or female, more often white than black, etc. But the fact is, Wegs is an equal-opportunity scourge....
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    Have you called in to Adds, Sam? And I'd go easy...

    Have you called in to Adds, Sam? And I'd go easy on the acetominophen. (Remember the discussion we had a while back about how easy it is to overdose on the stuff and blast the poor liver?) On the...
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    Glad you checked in, Marta--I was getting a bit...

    Glad you checked in, Marta--I was getting a bit concerned. I do understand about the energy level, of course. But it has been a long time, perhaps a depressingly long time, since I've had to chase...
  11. Good call, Sangye--I missed this, which is an...

    Good call, Sangye--I missed this, which is an astounding weight loss. It is worth an immediate phone call to the Wegs doc.

    Al
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    One of those fine things about pred they sort of...

    One of those fine things about pred they sort of neglect emphasizing. As it happens, cataracts happen for most of us anyway, it's just that pred speeds up the process considerably. (It doesn't help...
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    As I noted on another thread, a WG diagnosis...

    As I noted on another thread, a WG diagnosis cannot be made from the ANCA titer alone. It needs to be in conjunction with symptoms and a biopsy. On the other hand, the ANCA test will often alert the...
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    A couple of points, Sam. First, antibiotics do...

    A couple of points, Sam. First, antibiotics do nothing for a cold, since antibiotics work only on bacteria (when they do), but a cold is a virus. Secondly, I am leery of "just a cold" for Weggies....
  15. Thread: ENT specialist

    by Al
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    Janet, usually a WG diagnosis requires 1)...

    Janet, usually a WG diagnosis requires 1) symptoms, 2) ANCA positive titer, and 3) pathology report from the biopsy. Even when the ANCA test is negative, the other two might be enough. But the gold...
  16. Thread: Big life change

    by Al
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    This is yucky, Jana. But I do agree that your...

    This is yucky, Jana. But I do agree that your health must come first. I am glad your husband supports you. Please let us know how your thoughts progress.

    Al
  17. Janet, there are parts of the immune system that...

    Janet, there are parts of the immune system that have an inappropriate response. But no, the meds do not shut down the entire IS. Nor should they: the point is merely to keep the "wrong-headed"...
  18. Thread: Memory Problems

    by Al
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    Memory is a curious business, and it comes...

    Memory is a curious business, and it comes hardest just when we worry about it the most. The meds we take do not help, but perhaps doing the crosswords and other puzzles do, some, at least. And...
  19. Thread: no appetite

    by Al
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    Again, yo have really had a tough go. No wonder...

    Again, yo have really had a tough go. No wonder your system is not interested in eating. But please take care of yourself--whatever it takes.

    Al
  20. Thread: hard week

    by Al
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    Courage does come hard, but think of how brave...

    Courage does come hard, but think of how brave you must be just to live--and think of those you are living for.Even more reason to take extra care of yourself. We love you.

    Al
  21. It is indeed a crappy deal, LisaMarie. Glowing in...

    It is indeed a crappy deal, LisaMarie. Glowing in the dark can be entertaining, though, and maybe will take the edge off things. But maybe the best thing is as you suggest: Opening a bait shop in...
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    Not, unfortunately, an untypical story, Davey....

    Not, unfortunately, an untypical story, Davey. These things are difficult to diagnose, and it often takes a long time and a lot of mis-direction to get there. I'm glad you are taking care of yourself...
  23. Thread: Cute animal stories

    by Al
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    http://www.wegeners-granulomatosis.com/forum/image...

    http://www.wegeners-granulomatosis.com/forum/images/attach/jpg.gif I think this qualifies as cute. This deer is napping outside my window.

    Al
  24. Thread: some good news

    by Al
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    Sorry to hear that, vdub. What an awful time to...

    Sorry to hear that, vdub. What an awful time to be in Florida. (Er, is there a good time...?)

    Al
  25. Thread: hard week

    by Al
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    For all those who have lost someone this way:...

    For all those who have lost someone this way: This is so profoundly difficult that it is is hard to know where to start. I know the temptation is to blame someone or some thing, but it is impossible...
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