Search:

Oops, I see you answered my questions in a prior post, Anne. thanks.

Hi Anne, are you saying that most WG people don't feel better after a series of sinus infections, as I am feeling right now? From what I've read, it sounds like I could have "smoldering" WG that...

Oh, i thought that was the way to tell if you had WG. FYI, I saw my ENT this week and he put a scope up my nose and said there were no granulomas in my sinuses and they were really clear. Can they...

wow, Rose, that's serious. what were your symptoms?
OTOH, you were fortunate (?) to get a diagnosis that was "curable" since most vertigo is only resolved by waiting it out, while being spaced out...

I understand what everyone is saying, but if my blood work shows that there are no high ANCA levels, wouldn't that be sufficient to say I do not have WG?

Hi Anne, I didn't PM you b/c i think we covered the vertigo issue!:rolleyes1: Did you read my thread on my visit to Univ of Penn?

Wow, how many doses do you take per year? We can't ever win the argument with insurance companies. My BF never gets sick, but this past year, she was almost as sick as me, and can't even get her...

Hi Mike, the ENT that I try to see whenever I have sinus issues is a sole practitioner and is very difficult to get an appointment with when one is sick. Consequently, I ran to urgent cares...

Alaskatom, I don't see ESR and/or CRP on the blood work. What do those indicate?

Met with the Rheumy who specializes in vasculitis. She couldn't really explain the high pANCA, besp, since the PR3 and MPO were normal. She ran ANCA blood work and a urine sample.

I told her...

Hi Anne, my tinnitus has been with me most of my life. I ignore it for the most part, but in the Spring, it seems to be a lot worse. Have you ever heard of Spring vertigo? This cold, dry, windy...

Hi Anne, vertigo is terrifying and debilitating. I've had episodes where I couldn't move a muscle for 24 hours. Just took xanax so i could sleep it off. I literally crawled to the bathroom, unable...

drz, that's worrisome, especially since I saw my ENT yesterday and brought my blood work in, he scoped my sinuses and declared them to be near perfect condition and totally believed I did not have...

Hi drz, what is a BAHA?

I've had tinnitus most of my adult life. I also get ear fullness, but thankfully, no ear aches to speak of. This past week, the pollen count is off the charts, and my ears have been screeching...

Thanks, Debby.

I read that life expectancy after diagnosis of Wegs is 2 years without treatment. If that is true, it doesn't seem possible Wegs could be dormant for years, is it? I wondered if my prior issues...

Hey Michelle,

I had a few sinus infections over my lifetime. 5 years ago, I got the HiN1, and either another flu or very bad sinus infection that year. I also started teaching young children...

Annekat, I missed your post. Wow, I can't believe they didn't see the change in your nose. Did you get it repaired?

I am so sorry your child is going through this. Were antibiotics given for her numerous sinus infections?

Hey Jaha sorry I confused you with Arieta. I'm glad you are going to be ok. What stomach med are you taking, and why?

My bf has a cyst on her kidney that is half the size of her kidney and the...

Ditto!:thumbsup:

Arieta, how did you appointment with the gastro doc go? How are you feeling?

Debbie, same goes for me. If my primary doc didn't recommend I see an immune doc, I never would have known I had a high pANCA level. Next week, I see a rheumy and will learn more. If you don't...

Thanks, Ann. Did you wake up one day and see the change in your nose? I assume the doctors you saw never noticed a forming of a saddle nose?