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  1. Replies
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    to honor Jack

    to honor Jack
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    Stay strong, sending you all my prayers and love.

    Stay strong, sending you all my prayers and love.
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    One more time trip to Paris

    One more time trip to Paris
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    I was very lucky I added only 7 lb from the...

    I was very lucky I added only 7 lb from the moment I was diagnosed and started on 60 mg of prednisone, now I am only on 5 mg for last 4 months but weight it's still there. I walk slowly a mile every...
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    I was on cytoxen for year and I did not tapper,...

    I was on cytoxen for year and I did not tapper, we just stopped and switched to methotrexate. I am on methotrexate for last 4 months and doing great. Good luck.
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    Marta Thank you for the up-date on Phil and...

    Marta
    Thank you for the up-date on Phil and please send him my best wishes.

    Barb
  7. Thread: Dogs

    by Barbara1966
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    11,266

    Congratulation Gwen!!!! I have poma-poo...

    Congratulation Gwen!!!!

    I have poma-poo (Pomeranian mix with poodle) she weight only 7 lb and know how to put smile on my face. We are walking 1mile every day rain or shine.
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    Sean I was out of work for 10 months the first 8...

    Sean
    I was out of work for 10 months the first 8 months I was not able to do anything, I lost some of my hearing and my lungs were involved. My biggest problems were coughing and walking - I would...
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    Carmen, So sorry for you lost, your mom will be...

    Carmen,
    So sorry for you lost, your mom will be missed terrible, our prays are with you.

    Barb
  10. Thread: In CT

    by Barbara1966
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    Sr.Roc Doctors at Yale New haven hospital that I...

    Sr.Roc
    Doctors at Yale New haven hospital that I see:

    Pulmonary
    Dr Richard Matthey and Dr Angela Argento 203-785-4198
    Rheumatilogy
    Dr Liana Fraenkel 203-737-54-30
  11. I will love to have my hearing beck.

    I will love to have my hearing beck.
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    My was positive because I was vaccinated as a...

    My was positive because I was vaccinated as a child
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    I was also misdiagnosed with TB, and very annoyed...

    I was also misdiagnosed with TB, and very annoyed because no one was listens what I was saying, to the point that I stop the medication on my own then changed the doctor.
    Find yourself a GOOD...
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    Thank you Phil for the information, please send...

    Thank you Phil for the information, please send her my love and prays
    .
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    Same story, I lost 90% in right ear and 40% in...

    Same story, I lost 90% in right ear and 40% in left, after one year from being diagnosed and 4 months in remission I dint recover any hearing beck. Even I was diagnosed pretty quick from the moment...
  16. Thread: Coughing

    by Barbara1966
    Replies
    18
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    4,298

    I'm taking 150 mg of cyclophosphamide per day, 5...

    I'm taking 150 mg of cyclophosphamide per day, 5 mg prednisone, sulfameth, omeprazole and calcium. My doctor want me stay on cycloph.. for another 3 months total 9 months.
    Barb
  17. Thread: Coughing

    by Barbara1966
    Replies
    18
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    4,298

    Brook I'm in remission for last 3 months my...

    Brook
    I'm in remission for last 3 months my cough dint stopped completely I still coughing clear sputum couple times a day if that. I do have a day or so without coughing.
    I was coughing almost 24...
  18. Thread: Vitamin?

    by Barbara1966
    Replies
    45
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    7,638

    Hi Brooke, For last couple months I take...

    Hi Brooke,
    For last couple months I take multivitamin WOMEN'S ULTRA MEGA from GNS store (just one worning you pee will turn green, the first time when I went to the bathroom and knottiest green I...
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    Kasia Witam w klubie skad jestes z Polski i...

    Kasia
    Witam w klubie skad jestes z Polski i gdzie mieszkasz Jak twoja mama chce porozmawiac niech dzwoni 860-314-1061

    Basia
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    I stop taking prednisone last week and still...

    I stop taking prednisone last week and still sweating excessively doing absolutely nothing.
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    Nancy, Who you have for doctors at Yale? I...

    Nancy,
    Who you have for doctors at Yale?
    I have: rheumatologist - Dr. Liana Fraenkel and pulmonary Dr Richard Matthay and Christine Argento.

    Phil.
    Yale is in New Haven, Connecticut
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    I’m 44 years old in a couple of days (March 17th)...

    I’m 44 years old in a couple of days (March 17th) I was born and raised in Poland and moved to United States 23 years ego. I’m marred to the most wonderful man for 22 years and we have two wonderful...
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    Take care of yourself, my prayers are with you....

    Take care of yourself, my prayers are with you. Get back soon.
  24. Thread: Thanks

    by Barbara1966
    Replies
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    2,127

    Happy Birthday John !!!!!!!!

    Happy Birthday John !!!!!!!!
  25. Thread: Symptoms

    by Barbara1966
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    4,158

    My problems started with clogged ears. One week...

    My problems started with clogged ears. One week later I lost hearing in one ear and two weeks later I lost hearing in the other ear.
    Next was dry chronic cough. Then, X-rays showed huge lesions on...
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