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  1. Replies
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    The cheek,and jaw involvement was more of a huge...

    The cheek,and jaw involvement was more of a huge inconvenience,than anything else.A mass in my cheek was discovered,and a CT scan showed activity in my jaw.Three different biopsies were...
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    Hi Vansyckle73,I am very sorry that you have this...

    Hi Vansyckle73,I am very sorry that you have this disease, but this is a great place to be if you do.Clearwater,Fl is my old stomping ground. I spent a lot of time at Morton plant many years ago...
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    Happy belated birthday Andrew! Thank you,for a no...

    Happy belated birthday Andrew! Thank you,for a no commercials forum,and no pop ups.
  4. Thread: Photos

    by Titus3:2
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    Andrew,thank you.It was not me, or the alcohol.It...

    Andrew,thank you.It was not me, or the alcohol.It was my southpaw girlfriend.Had no idea why the picture is upside down.P.S. I was not speaking of my avatar pic.
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    Alysia,your loyalty,and love for Phil are...

    Alysia,your loyalty,and love for Phil are admirable.Some people move on quickly after the loss of their significant other,and others never do.I don't think there is a right or wrong,were this is...
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    Jeother,I hope your balloon dilation goes well or...

    Jeother,I hope your balloon dilation goes well or went well.My biggest problem from balloon dilation is usually recovering from the general anesthesia.Misdiagnosis is not unusual,but having a...
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    I was diagnosed with acid reflux many years ago...

    I was diagnosed with acid reflux many years ago by ENT,and currently prescribed Nexium by them.Thrush,fungal issues have been ruled out.So has infection.I have been seeing ENT every three months to...
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    I have been taking Natures Made super b complex...

    I have been taking Natures Made super b complex for years,and I can't say it has helped me personally. When all else fails a good stiff drink knocks the edge off.Well,maybe two or three.
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    Cutehair,you certainly have good reason to be...

    Cutehair,you certainly have good reason to be upset.I developed ulcers on my pharynx in August of last year which is still going on ,and has resulted in tissue loss.ENT,and Rheumatology don't believe...
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    Hello,and welcome blm.I saw your post on Mike's...

    Hello,and welcome blm.I saw your post on Mike's thread,and will comment here instead.You do need a good PCP,Mine is my favorite doctor.Rheumatology,Pulmonary,Etc,do not want to be bothered with...
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    Wow,the MG looks brand new,and the AK what's not...

    Wow,the MG looks brand new,and the AK what's not to like.I am from the Gunshine State,and we do love our guns.
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    Mike ,great video.You are a great ambassador for...

    Mike ,great video.You are a great ambassador for this disease.Hope you are able to get out and hug a curve on your bike.Good luck,Keith.
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    Gab,you have a lot going on right now.Maybe...

    Gab,you have a lot going on right now.Maybe getting your ENT to have a look see,when you get a chance would give you some piece of mind.It may just be allergies,but better safe than sorry.Good luck...
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    Debbie,sorry you are having a tough time right...

    Debbie,sorry you are having a tough time right now.You are an old hand at this disease,and have a top-notch GPA doc.It is very unlikely that you have GPA activity in your brain.You are not going...
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    Alysia,it is a good thing you started this...

    Alysia,it is a good thing you started this thread.Even with gilders explicit instructions on how to use the older WG website over the new mobile one it took me this long to figure it out on my...
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    Gab,my ENT has said I might as well be walking...

    Gab,my ENT has said I might as well be walking around with my fingers in my ears.Due to the damage GPA has done.When my hearing problems started abruptly years ago.The ENT doctor in charge,believed...
  17. Jana,congratulations on your remission.It was not...

    Jana,congratulations on your remission.It was not easy ,but you whipped it.You are a big asset to the forum ,and you have given much more than you have taken.I hope you never need to battle this...
  18. Gab122,I had a partial nephrectomy in 2005 via a...

    Gab122,I had a partial nephrectomy in 2005 via a large incision,and was in the hospital a week.No fun.It was needed because of cancer.My girlfriend tells me the surgery is done now...
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    Tom,I am sorry GPA,and the drugs used to treat it...

    Tom,I am sorry GPA,and the drugs used to treat it have put you through the mill.It sounds like you have some pretty good docs.Doing the best they can.I am glad you enjoyed your trip to Delray...
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    I live in GAINESVILLE FLORIDA,5 days,and then...

    I live in GAINESVILLE FLORIDA,5 days,and then Ormond Beach nine days on a rotating basis.My avatar is the view from our condo in Ormond.The ocean air cleared up a lung infection that nothing else...
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    Sangell,I am very sorry that you are in this...

    Sangell,I am very sorry that you are in this terrible situation of needing a Kidney transplant.The numbers you have given in your opening thread for the odds of getting a kidney transplant are very...
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    I receive a lot of phony emails from pay pal or...

    I receive a lot of phony emails from pay pal or paypol,and banks that I don't do business with.It's all scary.Facebook is a great place to connect with people you really trust .Friending people on...
  23. Debra,I understand what you mean that taking...

    Debra,I understand what you mean that taking vitamins in high doses can be harmful or toxic to us.Seems like I stopped taking super B complex because someone on the forum said it may stimulate the...
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    Alysia,Phil was lucky to have you at his side.We...

    Alysia,Phil was lucky to have you at his side.We know you to be tenderhearted ,and tolerant.You can be a force to be reckoned with,if the need arises.It would not have surprised me had you been...
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    Jana,it must be a great comfort for you to have...

    Jana,it must be a great comfort for you to have such a prestigious doctor.I will let you know how this plays out.I might end up blowing some money,and going back to the Mayo Clinic if this situation...
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