Search:

Type: Posts; User: drz

Page 1 of 20 1 2 3 4

Search: Search took 0.05 seconds.

  1. Thread: Hello from Shawny

    by drz
    Replies
    14
    Views
    254

    Re: Hello from Shawny

    High doses of pred will most likely affect your emotions and may require some adjustments to your other meds to compensate for this influence but good follow up care should help you navigate this OK....
  2. Thread: Transplant

    by drz
    Replies
    249
    Views
    26,346

    Re: Transplant

    The trend is what is disturbing. Other wise my readings of kidney function usually fluctuate from test to test and my doctors are not concern over changes of a few points as long as they go both up...
  3. Replies
    3
    Views
    65

    Re: PR3 Antibodies Elevated

    If you are having any symptoms besides anxiety I would go to a walk in or urgent care facility for more tests. One can lose kidney function in days and not be aware of any problems till the damage...
  4. Re: shankxonline - My path to identify GPA and overcome it

    I remember being diagnosed with plantar fascitis from pain in my feet years before I was finally and correctly diagnosed with Wegener's. The treatment for the plantars of course did little or nothing...
  5. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Sorry to hear about your issues. Hope things improve for you. Your case exemplifies how GPA can cause bad things to happen quickly and affirms the need to get quick and appropriate care for any...
  6. Replies
    17
    Views
    365

    Re: 1000mg or 2000mg rtx ?

    There seems to be different schools of thought on RTX dosage. No research results to help clarify the issue. Is it better to have smaller dosages more often or large dosages at longer periods of...
  7. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Aggressive treatment can usually save the kidneys if caught in time. And often, usually, most symptoms improve with right treatment. For most of us things are usually at their worst at the time...
  8. Thread: Lena's story

    by drz
    Replies
    12
    Views
    284

    Re: Lena's story

    Muccinex can help thin the mucous. I take a generic form 2x a day and more if needed. I also find the SinuPulse machine to work better for me than the squeeze bottles. I also make my own rinse with 3...
  9. It is great to read about people surviving...

    It is great to read about people surviving decades of GPA even when the treatment was not as refined as it is today. This should be reassuring for people recently diagnosed.
  10. Re: Imuran (Azathioprine) and Sun Exposure - How Careful Are You?

    I too have been using generic AZA for over 8 years at a much higher dosage (175 mgs) but didn't know that sun exposure was a problem or risk. No one has warned me about it. Skin lesions seem just...
  11. Replies
    3
    Views
    217

    Re: New here, being diagnosed

    Glad you were lucky enough to get an early diagnosis and proper treatment. Things now sound encouraging.
  12. Thread: Transplant

    by drz
    Replies
    249
    Views
    26,346

    Re: Transplant

    Sorry to hear about the fluctuations in kidney function and extra stress it causes. Hope things get better soon.
  13. Thread: odd symptoms?

    by drz
    Replies
    6
    Views
    620

    Re: odd symptoms?

    What do the neurologists recommend? Any further testing? Wegs does increase our risk of many other medical problems.
  14. Replies
    2
    Views
    417

    Re: Son, 20 GPA diagnosed 2 weeks ago

    I went through this process 9 years ago and my story is listed on this forum in several places. Recovery is a slow process but mine was much slower than your son's is apt to be since I also had type...
  15. Thread: Transplant

    by drz
    Replies
    249
    Views
    26,346

    Re: Transplant

    i hope they get it sorted out quickly and that it turns out to be an easy fix for you. It must be hard dealing with all the uncertainty about what is going on in your body while hoping for a good...
  16. Replies
    7
    Views
    504

    Re: Hydroxychloroquine?

    I some times wonder about what is going on with Wegs in my body when I have some increased residual symptoms like nose bleeds, headaches, dental sensitivity, joint pain, eye pain, fatigue, etc but...
  17. Replies
    21
    Views
    2,291

    Re: Building Resistance to Rituxan

    I love the quote from Jack. I will always treasure his advice and support he gave me when I first started on this forum.
  18. Thread: Mags

    by drz
    Replies
    7
    Views
    526

    Re: Mags

    Yes, I can empathize.

    Wegs took my hearing and balance in right ear. Left ear was already damage from years of infections and several operations including a mastoidectomy. So my hearing and...
  19. Replies
    20
    Views
    3,121

    Re: Your personal experiences in treatment?

    Slower tapers down on Pred have less return of residual GPA symptoms. I went down by 1/4 mg every week or two and had minimal difficulty with return of GPA symptoms and they usually went away in a...
  20. Replies
    20
    Views
    3,121

    Re: Your personal experiences in treatment?

    One thing to be aware during early treatment of GPA is the effect high dosages of Prednisone can have on your feelings. I often referred to these periods of feeling a lot of energy which gave rise...
  21. Replies
    20
    Views
    3,121

    Re: Your personal experiences in treatment?

    i had symptoms of GPA (Wegs) for two or three years before I finally got a diagnosis and appropriate treatment. By then my health was so poor I felt unable to work so chose full retirement. Shortly...
  22. Thread: Nine years

    by drz
    Replies
    6
    Views
    440

    Re: Nine years

    April 2010 I was trying to wake up from intubation and learn to try breath again on my own. Must have been a bad month for Wegs for at least three of us so far on this thread.
  23. Thread: Dsap

    by drz
    Replies
    4
    Views
    311

    Re: Dsap

    I just thought it was a common side effect of GPA like several other symptoms. I see dermatolgists who freeze some spots although I don't know or see the difference between those they deem...
  24. Replies
    4
    Views
    261

    Re: ear issues with Wegener's

    GPA symptoms are very diverse and vary greatly from one person to another. Sinus infections and damage to sinus areas are very common in GPA. Blocked Eustachian tubes and ear infections are also...
  25. Replies
    3
    Views
    459

    Re: Stress and Vasculitis

    I had this as part of the symptoms when my residual GPA symptoms flared up but I think the nose bleeds caused my stress rather than the other way around. The other symptoms were easier for me to deal...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4