I am a Weggie and live in South Florida. I was recommended by Yale University, when I went there for advice, Dr. Eileen Tozman rheumatologist at University of Miami.She is a brilliant doctor and...
Type: Posts; User: MAGNOLIA
I am a Weggie and live in South Florida. I was recommended by Yale University, when I went there for advice, Dr. Eileen Tozman rheumatologist at University of Miami.She is a brilliant doctor and...
Hi Patty: I'm still off dialysis. When I first had it, back in January 2015, nephrologist said there was a possibility of getting off it. I have been off it since April.They did bloodwork this week.I...
Magnolia
The reason I went on dialysis back in February, was because I had taken three rounds of antibiotics for a respiratory infection. After a few weeks of dialysis, much to my surprise, they...
Magnolia
I was diagnosed with Hashimottos Thyroidytis about 30 some years ago. My wegners, which was partial in the beginning, started in 2002. I was told that once you have an autoimmune disease,...
I was taken off dialysis after about three weeks....Hurray! I prayed so hard, and God heard me.I read that people with Wegs who need dialysis, recover 3x as often as other patients doing dialysis...
I certainly am impressed hearing about the courage and resilience of wegeners patients. You certainly are a great source of info and support.I am now struggling, trying to
get off dialysis.The...
I started dialysis back in February. My kidneys recouped and i was dialysis free for one month. However, I got a UTI and /Dr. prescribed antibiotics. Guess what?
My kidneys went bonkers again. The...
Thanks Debra, I appreciate your concern.Hopefully you will not have kidney involvement. Today I went to dialysis. Not a lot of fun. tomorrow, I have plans to go out with friends.
Keeping busy does...
Hi Annekt: Sinxw you have been so supportive, i want to thank you. I went to my Rheumy at University of Miami and to Nephrologist.We agreed to start the dialysis today,Please pray for me.
My best...
Hi Lisa Mae: I think I wrote todays story on the wrong link !Sorry. Thanks for responding. I went to my rheumy today and she aid my P anca tithers wera much lower,due to Rituxan
Gave me 10 mg pred...
Went to Nephrologist who showed me my markers: creatinine, etc., have been getting worse. He gave me a choice, wait one more week or get bloodwok tomorrow and start dialysis on Thursday.Lovely,
isnt...
If I need to do it, I will ask for the peritoneal, which you do yourself overnight.I see my rheumatologist on Tuesday.This is really major stuffand needs to be discussed.:mad1:
Not too thrilled. Any...
If I need to do it, I will ask for the peritoneal, which you do yourself overnight.I see my rheumatologist on Tuesday.This is really major stuffand needs to be discussed.:mad1:
Not too thrilled. Any...
To Annekt:
I am going through a bad time. Your words are so supportive. I will let you all know what happens after doctor visit tomorrow.I went to church and prayed, for me and for all of you.
Good...
Nice to meet you all !!I hope I can contribute with my experience of this rolle coaster ride....and learn from your stories.
After my initial flare and 6 months of pred. I was o.k. and remained so...