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  1. Thread: Newly Diagnosed

    by Masha
    Replies
    23
    Views
    207

    Re: Newly Diagnosed

    Sherry, Regarding your long term disability_ If you qualify for long term disability and you have paid into Social Security for 40 quarters, you are qualified to receive the full amount of SS that...
  2. Thread: Newly Diagnosed

    by Masha
    Replies
    23
    Views
    207

    Re: Newly Diagnosed

    Sherry, remission is hard to determine, since there are many blood tests involved. My C-anca has always come in higher than normal. I think the best way to tell remission is how you feel, doesnít...
  3. Replies
    11
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    244

    Re: new member with question regarding remission

    Hi tac. I wrote a response to newly diagnosed above. It is meant for you and other new members too.
  4. Thread: Newly Diagnosed

    by Masha
    Replies
    23
    Views
    207

    Re: Newly Diagnosed

    Welcome to all the new members who have recently come on board. This is not a fun disease but this is a great site.
    I will reiterate what others have already said. You need a doctor highly...
  5. Thread: Strict Dieting

    by Masha
    Replies
    50
    Views
    3,973

    Re: Strict Dieting

    I made us root beer floats for Independence Day. Used diet root beer , frozen yogurt, frosted mugs and PAPER straws.
    Also had a yummy watermelon. Best news yet, my wegs mouth could handle the cold...
  6. Thread: odd symptoms?

    by Masha
    Replies
    6
    Views
    183

    Re: odd symptoms?

    How is his blood sugar?
  7. Replies
    2
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    134

    Vasculitis Symposium

    Who is going to the Vasculitis Symposium in Minnesota? Who has been to one?
  8. Thread: Went to duke

    by Masha
    Replies
    10
    Views
    306

    Re: Went to duke

    Thanks Keith. Like you, my goal is to be drug free someday. Time will tell. Duke is great! If it wasn’t for meeting you on this site, I might never have thought of it. I am seeing a light in my...
  9. Thread: Went to duke

    by Masha
    Replies
    10
    Views
    306

    Re: Went to duke

    Thanks Alysia. I knew he was a Nazi. The article you gave me helped me understand the timeline. Sadly, the US brought many of their scientists here to pick their brain after WWII. We must never...
  10. Thread: Went to duke

    by Masha
    Replies
    10
    Views
    306

    Re: Went to duke

    Yes, I am to start on Bactrim. If I can tolerate it, then I can begin the slow decrease in prednisone. I know others on this site are on it. Can’t remember who. One of the things the literature...
  11. Replies
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    Re: Hello from another new member

    Welcome Tricia. This is a marvelous site. Some of the people here have really had a rough go of it. They are more than willing to share their experiences. What I have learned here is worth gold. ...
  12. Thread: Went to duke

    by Masha
    Replies
    10
    Views
    306

    Went to duke

    Hey Everyone,
    I havenít posted much recently because I was making some changes in my treatment.
    Right now I am one happy camper. They say you donít know what you have been missing until you found...
  13. Thread: Transplant

    by Masha
    Replies
    229
    Views
    20,318

    Re: Transplant

    Normal! Yippee! Yippee! Yippie!
  14. Thread: Transplant

    by Masha
    Replies
    229
    Views
    20,318

    Re: Transplant

    Now it seems that we have to rely on what got you this far, prayer and positive thinking.
    Masha
  15. Replies
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    9,925

    Re: Happy Birthdays Thread

    mshb, eat cake, fly balloons and do a happy dance! Happy Birthday and many more.
    Masha
  16. Replies
    111
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    9,925

    Re: Happy Birthdays Thread

    Happy Birthday to me2! Celebrate and be well. All the best.
  17. Thread: Transplant

    by Masha
    Replies
    229
    Views
    20,318

    Re: Transplant

    Please everybody don’t jump all over me. But I am wondering, Pete, if it would be safe for you to increase your oral prednisone until you talk to a doctor. Boy, Keith is right on! Even our grocery...
  18. Thread: Transplant

    by Masha
    Replies
    229
    Views
    20,318

    Re: Transplant

    Sounds all good. When we didn’t hear from you for a day, I was ready to put an all out alert in search of our hero. Use keep the prayers coming your way.
    Masha
  19. Thread: Transplant

    by Masha
    Replies
    229
    Views
    20,318

    Re: Transplant

    You are definitely giving everything your best shot. I wish I could say and do more than to tell you my husband and I keep you close to our hearts and in our prayers.
    Masha
  20. Thread: Transplant

    by Masha
    Replies
    229
    Views
    20,318

    Re: Transplant

    Oh Gilders,
    I ditto what Pete and Alysia said. One day or one hour at a time. My prayers continue.
    Masha
  21. Thread: Transplant

    by Masha
    Replies
    229
    Views
    20,318

    Re: Transplant

    Pete,
    We are just so glad to hear from you. When you are feeling 100% then we all want to hear about it. Until then your number one job is to get healthy. I am not surprised you are weak. So...
  22. Thread: Transplant

    by Masha
    Replies
    229
    Views
    20,318

    Re: Transplant

    I know it is hard, but stay strong and tell that infection to take a hike. You’ve got things to do and places to be. Prayers continue.
  23. Thread: Transplant

    by Masha
    Replies
    229
    Views
    20,318

    Re: Transplant

    Oh, thank you so much for the update. Like everyone else, I have been keeping you and your dad in my prayers. Bet your wife is breathing easier too. Thoughts and prayers continue.
    Masha
  24. Thread: Insomnia?

    by Masha
    Replies
    15
    Views
    1,430

    Re: Insomnia?

    Arleta,
    I think what you are experiencing is common with people in the silver generation. My insomnia is caused by the prednisone. I once received some advice (this was pre prednisone). When you...
  25. Replies
    9
    Views
    382

    Re: Advise on migrating to Australia

    drz,
    A lot of people are unaware of what you just said. My husband just explained to me that if a person paid only a limited amount or no amount at all into Social Security, they will not qualify...
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