Search:

Hi, all!

my wife's treatment seems to be working well. In the past weeks the granuloma disappeared completely, she's been getting her prednisone dose down and the results were showing a decreasing...

not necesarily the case nor trying to get you to panic, but my wife had a granuloma pushing her eyeball out of the socket (not as visible as it sounds, but it describes what was happening). she had...

Hi!

yes, harvesting eggs is a posibility but very expensive to say the least. we are considering it, of course, if it comes to no other alternative than taking this medication.

an update on the...

keep in mind also that although it didn't get the best results as a first choice therapy, infliximab seems to be a good alternative for refractory cases.

all the best!

Hi! thanks for the replies!

I spend the day doing research yesterday and I found a review article comparing the present alternatives to medication for ANCA+ vasculitis available (I posted it in...

an articule I found comparing the current treatment alternatives. there's a save as pdf button on the top right.

State of the Art in the Treatment of Systemic Vasculitides

cheers!

Hi! a quick update:

the rituximab treatment was posponed until last week due a runny nose and that the doctor didn't want to take any chances. bad news is she had a severe allergic reaction to the...

Hi all! thanks again for all the feedback!

so, the update: it's definitely not MS. her brain and LP came back spotless and there should be at least two different signs on that to consider MS as a...

Hi! thanks again for the answers!

when she got admitted to the hospital they checked her eyes thoroughly. even in the following days she got them checked many times so they ruled out a problem...

Hi! thanks everybody for writing! I'll try to address every question:

after reading the forum I also suspected it could be related to reducing the prednisone too fast (there's even a post with a...

Hi all!

I'm writing on behalf of my wife who's been diagnosed with WG a bit over a year ago. She started with joint pain and swelling in her lower limbs, and a possibly related ear infection...