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Type: Posts; User: Yogasloth

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    Re: Newly diagnosed and scared

    It makes me so angry when I hear that patients not get taken seriously. And it makes me even more angry when I hear you didn’t get your infusion because of bureaucracy. It shouldn’t be that way.
    I...
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    Re: Newly diagnosed and scared

    Alysia, you are right. For me this all is still new and my doctor told me not to focus too much on it. She told me it’s more important to listen what the body says. Obviously i would love to use the...
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    Re: Newly diagnosed and scared

    I was surprised yesterday to have an email in my inbox that someone replied to my thread.
    Kwnorton: I am so sorry that you are currently doing not that well. I hope you will soon be able to get the...
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    Re: Newly diagnosed and scared

    Hi everyone,

    I wanted to give you a quick update. My shitty year keeps on giving me more to battle. When I was on vacation my house got burglarized and last week someone rear ended my husband and...
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    Re: Newly diagnosed and scared

    Hi Pete, thanks for your answer. Do you mean I have to look out for those signs right now or when I think I have a flare up? I understood it so that currently I’m “safe” with the steroids and I’ll...
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    Newly diagnosed and scared

    Hey everyone,

    Just three weeks ago I got diagnosed with Wegener’s. I live in the Silicon Valley.I think initially it started with my first ear infection ever this May. Symptoms like fatigue came...
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