Search:

Type: Posts; User: gilders

Page 1 of 20 1 2 3 4

Search: Search took 0.02 seconds.

  1. Replies
    181
    Views
    69,776

    Re: Happy Birthdays Thread

    Kidney is still behaving itself thanks. I've a few issues to do with pain and severe fatigue, but so long as kidney is stable and wegs is under control, I won't grumble. Hope the lung issue isn't too...
  2. Replies
    181
    Views
    69,776

    Re: Happy Birthdays Thread

    Almost a week late, but Happy Birthday annekat
    Hope you're keeping well
  3. Thread: Third Vaccine

    by gilders
    Replies
    21
    Views
    925

    Re: Third Vaccine

    I'll be taking the third jab when it's available to me.
    I am on strong antirejection drugs (Immunosuppressants) and considering I had no reaction to the first 2 jabs and the fact that I'm at...
  4. Replies
    975
    Views
    176,414

    Re: pberggren memorial thread

    Happy Birthday Phil and Barbara,

    Missed and never forgotten.
  5. Thread: Donations

    by gilders
    Replies
    139
    Views
    89,186

    Re: Donations

    Hi Andrew,
    Sent donation usual way via PayPal.
    I don't suppose Stripe does international transfers for free??
  6. Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I've not been on RTX since before my kidney transplant just over 2 years ago, but I am on daily Adoport (Tacrolimus) and Myfortic (Mycophenolate).
    I received my antibody result today and did not...
  7. Replies
    15
    Views
    1,866

    Re: Gave Up on Facebook Groups

    Kidney function can jump around quite a bit, be it a different lab, what you've eaten and most importantly how well hydrated you are.
    Your best route to keeping kidneys healthy is to be well...
  8. Replies
    15
    Views
    1,866

    Re: Gave Up on Facebook Groups

    Hi Larry. Welcome to the forum.
    Glad your kidneys healed somewhat after a year of dialysis.
    I hope your function stays above 20%. I found that once my function dropped to 18% it was a steady and...
  9. Replies
    17
    Views
    1,340

    Re: Suspected Sneaky Kidney Involvement

    Hi Chadwyck.
    I've not visited the forum for a while, so missed your post. How are your kidneys doing now?
  10. Replies
    17
    Views
    1,340

    Re: Suspected Sneaky Kidney Involvement

    Opioid based drugs are generally safe for kidneys, but doctors are now very cautious prescribing them due to misuse and addiction. I use them, but they become ineffective quickly with me, unless I...
  11. Replies
    181
    Views
    69,776

    Re: Happy Birthdays Thread

    Happy Birthday Michelle!
    A few days late as usual :biggrin1:
  12. Replies
    118
    Views
    32,967

    Re: Celebrate how far we have come!

    So sorry to hear you're so sick!
    Fortunately I'm only on a very low dose of prednisone at the moment, but I really struggle with higher doses. When your emotions get the better of you, remind...
  13. Replies
    9
    Views
    4,719

    Re: Kidney Involvement

    Hi shankxonline ,

    I don't think Linda has posted anything in the last 3 years.

    I'd try not to worry about your kidney function too much. A sudden drop is preferable to slow chronic decline over...
  14. Replies
    239
    Views
    39,396

    Re: Coronavirus and GPA

    So good to hear from you, Alysia.
    It's great news that you've had your vaccination and all seems to be getting well organised in Isreal. The figures I've seen show that just over 10% of Isreal's...
  15. Re: New User with no diagnosis. Looking for advice.

    Nasal biopsy is a good idea, but there's been quite a few people who have had false negatives. If your kidneys, or lungs are effected, then the biopsies from these tend to be more reliable.
    I would...
  16. Replies
    239
    Views
    39,396

    Re: Coronavirus and GPA

    Pete just read your earlier post about your fall. Hope you're doing well with pain and the kidneys cysts are just the "getting old" variety and nothing sinister.
    Thanks for update regarding what Dr...
  17. Replies
    181
    Views
    69,776

    Re: Happy Birthdays Thread

    Hi @Alysia,

    It's my birthday today. :smile1:
    It's currently 2.30pm locally.
    Wife made me breakfast in bed and brought my birthday cards and gifts to the bedroom for me to open.
    My mum and dad...
  18. Replies
    181
    Views
    69,776

    Re: Happy Birthdays Thread

    Thank you Alysia and Phil.

    Our town and neighbouring towns are some of the worse in the whole of the UK. We have extra restrictions where you can't even visit anyone even in their garden. Yet pubs...
  19. Replies
    5
    Views
    1,152

    Re: Telling my story

    Happy anniversary!
    Good to hear that medical students are getting to hear it straight from the horse's mouth (hope you have that saying in the US) rather than what Drs "think" how it effects...
  20. Thread: Ear Wax

    by gilders
    Replies
    5
    Views
    876

    Re: Ear Wax

    Sounds like a good result in the end Pete.
    Hope you're doing well and keeping safe.
  21. Thread: Happy Birthday

    by gilders
    Replies
    6
    Views
    1,506

    Re: Happy Birthday

    Happy birthday Anne!!

    If Alysia can't eat the pie, I'll have her slice!:drool:
  22. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Hi Gary and welcome,

    I think the long term, higher-than-usual dose, of Pred could be due to the fact that the Drs had no other ideas of how to control the pseudo tumour?

    Long term steroid use...
  23. Replies
    118
    Views
    32,967

    Re: Celebrate how far we have come!

    That was such a good read DRZ. I hope you keep safe.
    You are correct about how busy the site used to be. I just checked my introduction thread and had many replies soon after posting it (including...
  24. Thread: Transplant

    by gilders
    Replies
    282
    Views
    130,003

    Re: Transplant

    Hi Alysia,
    My wife (Katrina) says "Thank you!"
    "Lockdown" was relaxed somewhat 2 days ago, including restaurants. But I feel it's still too unsafe, so I will prepare her whatever meal she likes.
    I...
  25. Replies
    975
    Views
    176,414

    Re: pberggren memorial thread

    Bathorse is back for his yearly visit.
    RIP Phil and Barbara N.
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4