Hi Razie,
I'm really sorry you've been sick. Your experience sounds very familiar to me. I especially sympathize with the pain you describe. However, I feel very sure you will get better and...
Type: Posts; User: Ruby
Hi Razie,
I'm really sorry you've been sick. Your experience sounds very familiar to me. I especially sympathize with the pain you describe. However, I feel very sure you will get better and...
So, I don't know if this will help, but I've been thinking about this for awhile, and I'll give it a shot. It's about the weight loss. I have had occasional problems with weight loss during WG...
Okay, so I will most readily admit hair loss is important to me. In fact, I have always been exceedingly vain about my appearance. There, I said it. I wish I could get over it, and I am slowly...
Hi Arlene,
Welcome. I'm pretty new here too, but I've had Wegener's for several years and I've been through a lot of ups and downs. I'm sorry you have been through so much, but I believe you...
I was told by a pulmonologist that I had limited Wegeners when I was first diagnosed. At the time I had both kidney and lung involvement. I asked him what he meant and it seems like he said...
I arrived a little late for the party, but Happy Birthday everyone! I really just wanted to say THANK YOU to Andrew for setting up and maintaining this site. I know it must be a great deal of work,...
Hi Anabanana and Freaky Schizogirl,
I have the same fondness for prednisone that both of you have. That is I hate it. I've been on high sustained doses with what seemed to me an agonizingly slow...
Hello,
Please allow me to introduce myself. My name is Ruby. I was diagnosed with Wegener's about 16 years ago. I had typical symptoms and was being treated by an ENT doctor for what was...