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  1. Replies
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    I have family close to you in Daphne and Spanish...

    I have family close to you in Daphne and Spanish Fort. No recommendations for care though.
  2. Thread: Harold Ramis

    by julia
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    25
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    5,832

    One article quoted Drl Peter Merkel. The article...

    One article quoted Drl Peter Merkel. The article did say it started with an infection.
    A
  3. Big news around here. Wonder what form, He lived...

    Big news around here. Wonder what form, He lived close to where I am, sounds like was a nice man.
  4. Thread: Imuran

    by julia
    Replies
    18
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    4,149

    I take imuran (azathioprine). Have taken for over...

    I take imuran (azathioprine). Have taken for over 3 years. Do not notice any side effects.
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    I had vision issues when on pred. I developed...

    I had vision issues when on pred. I developed glaucoma which is now fine since off pred. I also had diabetes due to pred, also gone. I feel like I had symptoms similar to yours. Hard to describe,...
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    I think I tapered from 60 to 40 but the doctor...

    I think I tapered from 60 to 40 but the doctor may have had me alternate the dosages for a week or so. If I remember correctly.
  7. Thank you so much for this site Andrew. If you...

    Thank you so much for this site Andrew. If you are ever in the States I will buy you a drink.
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    Did not work for 2 years after diag.Went back to...

    Did not work for 2 years after diag.Went back to work 1.5 yrs ago. I am able to leave when they are not busy. I can take time off for Dr appt. if I give advance notice or just leave early if we...
  9. Thread: Lightwarrior

    by julia
    Replies
    57
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    8,807

    Sorry to read about lightwarrior. She will be...

    Sorry to read about lightwarrior. She will be missed.
  10. Replies
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    I remeber taking it years ago. Can not remember...

    I remeber taking it years ago. Can not remember what the benefits were supposed to be.
  11. Replies
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    Have a wonderful birthday!!!

    Have a wonderful birthday!!!
  12. Replies
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    5,178

    Hoping this helps! You deserve it!

    Hoping this helps! You deserve it!
  13. Replies
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    I think you can find something in the middle.When...

    I think you can find something in the middle.When I was in the hospital about 7 years ago I sent my husband and daughter to get me some clean underwear. They brought back the largest pair of...
  14. Thread: 10,000 Plus

    by julia
    Replies
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    6,258

    Looking forward to the next 10,000. Your...

    Looking forward to the next 10,000. Your knowledge is a comfort.
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    One year off pred. Have lost some weight. Lost...

    One year off pred. Have lost some weight.
    Lost some while tapering pred
    more when off pred.
    It comes off very slowly. I am able to exercise, water aerobics and walking.
    Some time ago I...
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    Never took mtx. Had watery eyes was on pred at...

    Never took mtx.
    Had watery eyes was on pred at the time and maybe cytoxin for part.
    It was very annoying.
    Hope it clears up.
  17. Replies
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    I attended the seminar, interesting, nothing...

    I attended the seminar, interesting, nothing really new. I am tired. Appreciate the speakers coming to Chicago.
    Vasculitus Foundation wants to really start getting the word out about the disease. ...
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    Happy Birthday!!Enjoy the day!!

    Happy Birthday!!Enjoy the day!!
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    I have signed up to attend. Looking forward to it.

    I have signed up to attend. Looking forward to it.
  20. Replies
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    I have read that they are updateing/changing many...

    I have read that they are updateing/changing many diseases named after people. Like our disease they want the name to represent the "condition". I do not mind the change.

    names
    Granpollys,...
  21. Thread: Hope

    by julia
    Replies
    15
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    3,168

    Congrats. I enjoy reading posts like this.

    Congrats. I enjoy reading posts like this.
  22. Thread: Wedding Bells!

    by julia
    Replies
    36
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    6,800

    it is an umbrella

    it is an umbrella
  23. Replies
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    I take a pill for blood pressure. While on...

    I take a pill for blood pressure.

    While on pred my blood pressure was in the 130's on occasion. Usually was below 120.

    My rhuemy said that the meds help the kidneys. I did not ask him to...
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    My memory is shot and I am not sure I wrote this...

    My memory is shot and I am not sure I wrote this down anywhere but, Last October I believe my doctor had me do 5mg pred one day zero the next. I did this for about 3-4 months than he had me do 2.5...
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    Heard on the radio today that the flu season in...

    Heard on the radio today that the flu season in the southern hemisphere this year is pretty mild.(so far). That has in the past been a pretty good indicator of how the flu season will be here in the...
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