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I almost allways have UTI's after rtx and get ciprodex (antibiotics) for 10 days at least, sometimes more, because of being more immmune compromised after rtx.

Hello, my friends,

Sorry for not being here for some time. I've missed you all :hug2:

I also got the first shot of the Pfizer anti covid vaccin last Thursday, December 31 - best way to end...

Sounds tough... I am sorry. Sending you prayers.

How are you doing ?

I did have "pneomonia" which was wg flare. Had it in 2 or 3 flares.

I hope that you have recovered ?

Maybe it was some food poisoning ? If I remember correctly, you have MC like I do, so we are very sensitive to many kinds of foods.

This is the link for the donation thread:

https://www.wegeners-granulomatosis.com/forum/threads/3394-Donations?highlight=Donations


@andrew is doing a wonderful work here, without any...

This one is more promising then any vaccin and they have started the trial in UK:

https://www.bbc.com/news/health-55022288

Quote:

A possible alternative to a vaccine, for people without...

I have found 2 articles in the facebook vasculitis UK group.

The first - things are complicated...
...

me2 and NatriceRomeo - sending you prayers for an easy and perfect recovery. Can you, please, share what are your symptoms ? WG and covid might be too similar. With every morning coughing I would ask...

So it must be the smile :biggrin1:

Hi, how are you doing out there ?

I suggest we will collect here all the questions and medical info we can find on this subject, like professional articles or if someone has the chance to discuss...

Now that I think about it, I was also not beaten by mosquitos for many years now. Maybe it's the pred :flapper:

Welcome to the forum. How can we call you ?

In my humble opinion, your WG is too active for mtx or Imuran, and needs a more powerful med like rituximab.

Can you consult a WG specialist ?
...

Welcome Dutchie and congratulations for your triplets :hug3:

Like Pete wrote above, I do have a saddle nose because of WG but I am not going to fix it soon or probably ever. One needs to be in...

Today, 6 years ago, my beautiful Phil flied high with his Batman wings, to spend eternity with Our Lord.


I wrote to him:


Sweetie,


I can't believe it has been 6 years since you went...

Thank you, Michelle and Anne, from the bottom of my heart, for your beautiful and comforting words, and for being here all the way. I love you.

Please read this one:

https://abcnews.go.com/Health/cdc-death-report-fauci/story?id=72759172

Dr. Fauci was the one who established the treatment protocol of ctx plus pred for weggies more then...

Behaving like there is no covid - doesn't mean that it is not there. Worse - it only causes more spread of it due to not caring.

Israel is in a huge problem now because of this kind of attitude:...

Thank you, Natty. You are very kind. I hope that you are doing well. God bless you.

Phil's father passed away couple of days ago. He was very sick in the last 3 years or so and suffered a lot.

I was in contact with him and with Phil's mom couple of times a week on line and will...

As far as I know we need to increase the pred and take extra antibiotics.

Happy Birthday marta :wub:

I hope that you are doing well and that you birthday was (yesterday ?) As awesome as you are :hug3::hug3:

Hi gilders :hug3: I hope you still had a joyful birthday in spite of the restrictions.

Do I remember correctly that you got your new kidney around your birthday ?

Can your wife switch to...

Happy Birthday @Pete and gilders from @pberggren1 and from me. May you have an awesome day.

Not sure how bad is the covid at your area and how you can celebrate your day but I hope it will be...

Welcome to the forum, Gary. I think you must get second opinion from the best experts possible.

I live in Israel but my WG dr. Consults with prof. Jayne in Addenbrook. I tag @Geoff and...

Yes, Anne, chocolate works well for me :biggrin1: cheers :hug3:

(Thanks for your kind words... :blushing: )