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Type: Posts; User: nancytuesday

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  1. Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I have had three negative serum COVID tests after being vaccinated in March/April. I did a T-Detect test and that did show a positive response - but you have to pay for the test yourself (is not...
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    Re: Vasculitis Symposium

    I am hoping to go. I have never been to this conference but have been to many for a different rare disease.
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    Re: Need a referral

    Thanks for the immediate response and for the advice!
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    Need a referral

    Hi all!

    I hoping you can provide some insight and direction. I was diagnosed with Wegener's a year ago. Not a classical presentation but I am C-Anka and P3 positive. I have so far opted not to...
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    Nice NYTimes article on chronic disease

    Read this today and it resonated with me -- as I have only been part of the Wegs community for less than a year. Thought I would pass it along. "Five Things I Wish I'd Known Before My Chronic...
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