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Type: Posts; User: ljeff

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    Re: Recovering from symptoms question

    Yes I know what you mean. I finished 2 year treatment in June 2022 but have always had rovings pains in legs <> definitely getting worse now and I have an appointment at the hospital on Wednesday...
  2. Thread: Ongoing Pain

    by ljeff
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    Re: Ongoing Pain

    I am 2 years down the line with my diagnosis. Prior to actual diagnosis I developed an inflammatory arthritis affecting all of my big joints and quite severely my hands. When I got the ANCA diagnosis...
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    Re: Reactions to Covid-19 vaccinations

    Did you treat your joint pains with any specific medication
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    Re: Reactions to Covid-19 vaccinations

    Ive had 2 doses of the astra Zeneca vaccine and had no reaction to either dose - not even a sore arm. I suppose I do worry what it is really doing to the body and take the point crown eagle is...
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    Re: Covid vaccins and WG

    Im from UK and the vaccine is being rolled out now. I will be offered either Pfizer or AstraZeneca one in due course. Has anyone had any definitive guidance or recommendation from their doctor...
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    Re: Recent diagnosis and new to site

    Thanks DRZ
    Sounds we had a bit of a similar experience. I was diagnosed with Covid on a CT scan of my lungs. My chest X- ray was completely normal. I had gone to the ER with a pain in the lung which...
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    Re: Recent diagnosis and new to site

    Thanks Pete
    That is heart warming to hear you are back to health pre GPA. I am hoping for the same outcome .

    Lisa
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    Re: Recent diagnosis and new to site

    Thanks Andrew. So good to hear other peoples experiences because when you get a diagnosis of GPA its pretty awful as most people like me will never have heard of it previously but you need to learn...
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    Recent diagnosis and new to site

    Hi
    I am Lisa
    62 years
    one beautiful daughter
    Live in Belfast northern Ireland
    Retired in March from my job as genetic counsellor
    Diagnosed with GPA in May 2020 - rubbish way to start...
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