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Type: Posts; User: marta

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    Re: Rituximab V Azathiioprine (Imuran) advise

    Hi Ben, so good to hear things are looking up.

    The advice you got above is amazing. I can say without a doubt that the advice I got on this forum from this group saved my life more than once. I...
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    Re: Probiotics ? No Thanks..

    I think this is very interesting. I've been a probiotic fan for a long time, however not in the form of pills or supplements. I've only popped probiotic supplements when I've been in Mexico and have...
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    Re: Hi there Marta - PJ Day Parade

    Thanks gang.
    Wow. Can't believe you found this.

    I'm low key because I'm flaring again.... tis the season, ha ha ha.
    Been waiting on RTX, and going in Tuesday (3rd) for a shot of the magic...
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    Re: Vancouver, BC, Canada?

    Hey Sue,

    I didn't get the private message you said you sent on here. But I'm curious. Why does Dr. Dehgan want you to stay with your original rheumatologist? Is it because your diagnosis is not...
  5. Re: Searching for anybody that has connected their WG to vaccines.

    Back at ya bro.

    May 2018 be the best one yet.

    :thumbup:
  6. Re: Searching for anybody that has connected their WG to vaccines.

    You guys are awesome. Great link Bing. Thanks.
    It's so nice to not have to argue about what went down in your own case with people who were clearly not there, and just show them the science.
    ...
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    Re: Hospitalized currently praying for a miracle

    I just wanted to pipe in and say how sorry I am to hear that your family is going through this. I've often said that I think it's harder for our loved ones to watch us be sick than it is for us to be...
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    Poll: Re: Epstein Bar Virus Curiosity

    I don't know Ed. I've spent the last 8 years learning how WG and autoimmune diseases work, and now I read this random book, and it kind of makes sense, so I start to do research to see how things...
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    Poll: Re: Epstein Bar Virus Curiosity

    So stress can totally be a trigger. I'm now reading the whole life cycle of the human herpes viruses, and many if not all of them can get triggered from latency by stress, among a myriad of other...
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    Poll: Re: Epstein Bar Virus Curiosity

    Interesting Ed, in the book there is a whole chapter dedicated to Epstein Bar Virus causing tinnitus.

    So now I'm cross researching and it's fascinating. I've had ideas before that we can stop the...
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    Re: Any virtual workout buddies out there?

    Like drz said, there are lots out there. Mine is a Trek Powerfly 7, and it hasn't given me any problems thus far (3149.3km as of yesterday afternoon).

    I know I talked Brian's boss and his wife...
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    Re: Any virtual workout buddies out there?

    I'm sure I must have posted on this thread at some point as I'm subscribed, but I have to share this with you all. I don't think I've posted about this particular mode of exercise, and I think if you...
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    Poll: Re: Epstein Bar Virus Curiosity

    I'm the same. I've never had Mono, but many around me have, and I was a cold sore magnet (as is my kid) - I think I might be working on one right this moment, ha ha.
    I'm curious though. I am sure...
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    Poll: Re: Epstein Bar Virus Curiosity

    It's kinda out there Ed. So I don't know how far down the rabbit hole you wanna go. :blink:
    I think right now you focus on your treatment and getting back to normal.
    I will send you a PM because I...
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    Poll: Re: Epstein Bar Virus Curiosity

    Thanks gang. What I've learned since posting this, is that only about 30-50% of people show manifestations of illness when they get the virus. Apparently it's the most common virus carried by humans....
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    Poll: Epstein Bar Virus Curiosity

    Hey gang. I'm just reading an interesting book right now and am curious as to the history on this group - you know how we're always trying to make the connection. Depending on the results that come...
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    Re: Rituxan and infections

    Oh man! I'm sorry they're being jerks. I so hate it when that happens. Go where you can get help. If you have access to it, push as hard as you can. No kidding it's gotta go ASAP. I know I got IV...
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    Re: Rituxan and infections

    Back at ya Jana.

    I was thinking about you all week because I had the c-diff thing on my brain, and was at the doctor's for my daughter (who they think might have gotten PANDAS from a strep...
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    Re: Rituxan and infections

    I'm so with you Jana on how this forum has saved our lives, and sadly our knowledge sometimes comes from witnessing the loss of a dear friend on here. I know I wouldn't be where I am today physically...
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    Re: Design Stage Feedback

    Thanks drz,

    I think that's valuable info. I have to force myself to put my interest outside of WG. Include it but it's a small part of a much bigger puzzle that not a lot of people are trying to...
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    Re: Design Stage Feedback

    Hey Ben,

    I was just looking through my subscribed threads and stumbled onto this one and I wanna thank you for reigniting this idea. I will start putting all of this down on a list and approach...
  22. Re: 7 years ago today I became a member of this elite club

    I remember from our previous conversations, years ago, that we were even then diametrically opposed in how we perceive this experience. So I'm not surprised to see this comment in reply to mine.
    ...
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    Re: Help, Disability Question.

    I miss you Lightwarrior.
    I miss our beautiful Christy.
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    Re: Help, Disability Question.

    Hey Chris.

    I had to appeal their decision, and as I said earlier, once I pulled out both barrels (on my keyboard) I got a very apologetic acceptance. I can send you the letter I sent them if you...
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    Re: Help, Disability Question.

    This comment to me sounds like it comes from someone who is not very well versed in the world of Wegener's.

    Just so you know. If you can get disability, do. Please. Yes absolutely you can apply...
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