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If you don't have kidney involvement, try Methotrexate pills and an initial high doses of steroids.
If you have Wegs, in 3 days your symptoms will subside, in a week you'll be "fine."
Yes, get a...

1. Eat well anyway, but it's not nearly enough to offset the damage caused by the illness.
2. Crash on chocolate and be happy, regardless.

I'd be concerned about having to take immunosuppression medications and working in a school full of kids with the flu all the time.

Perf septum is not mild Weg. Constant joint pain and nosebleeds, not mild.
These are symptoms of active auto-immune. Remission is urgently needed.
Doctor "kind of left it up to her." Did doctor...

I'm on Mtx and Prednisone.
My Mtx slows things down so that a little Prednisone can bring the auto-immune attack to a complete halt (remission). I frankly don't think either drug can do the job by...

Lena,

Wow. You're so talented!
I hope you don't mind me sharing a link to your art for everyone here to enjoy.


Ed.

Hi Samantha,

I'd say make sure that they keep her vitamin D levels always high (blood work screening) and lots of calcium to prevent bone damage from steroids medication.
Best wishes to you and...

Agreed, you can change your dose later on once you have achieve remission, are taking low doses and gained experience with this.
There are two stages to our treatment: 1)Achieve remission 2)Maintain...

Then next time ask him to prescribe your Prednisone using the 2.5mg instead of 5mg pills.

So true!
I keep Prednisone in 1mg, 5mg and 10mg pills.
I adjust my dose on a daily basis, currently I'm at 3.5mg/day.
If you find that continuing to taper causes symptoms to reappear, then this...

Dear Sherry,

Sorry you are also going through this.

I'm about to complete my second year with this and I managed to figure out a few things about how this disease and the treatment interact...

I think that prednisone and motrin (ibuprofen) don't mix, take tylenol instead.

https://www.drugs.com/drug-interactions/motrin-with-prednisone-1310-780-1936-0.html

Can you do a simple test?...
Ask him to move his eyes up and down without moving his head.

Hi Angela,

Have you/can you take Nexium?
Nexium is recommended when taking high doses of prednisone.
I take it in the morning of the day I take methrotrexate.

Ed.

Sorry about your predicament.
I suggest you ask your doctor if Methrotrexate (Mtx) would work for you.
Here in the US, a month's supply costs only $40.
Good luck to you.

Yes, every one of these specialists should have GPA (and other AI) in their radar.
Vast majority of these eventually arrive at AI when AI should have been suspected at the beginning.
We all had...

What a great success story from Australia!

That is my problem with the Vasculitis Foundation here in the US.
Other than fundraising, they do nothing to next to nothing to bring awareness to all...

IMHO, your doctors failed (and are still failing) to treat you, thus your autoimmune disease attack has gone unimpeded for 8 years.
Find an entire new team of specialists.
Start with rheumatologist...

It may have something to do with a straining position of your hand(s) and/or body weight on top your hand(s) for a prolonged time while sleeping.

Otherwise under normal circumstances would not be...

I would also recommend to convey a sense of urgency because your daughter needs see the Weg specialist within a week instead of several months, these doctors are very few and tend to have long...

I'm glad for you. Your Rheumatologist is doing the right things.
I'm traumatized because my former rheumatologist failed to prevent my osteoporosis.

Hi Ken,

Fortunately, you were diagnosed early on.

Since you're taking high doses of prednisone, I strongly recommend checking your vitamin D levels, and get prescriptions for Vitamin D and...

Hi Eyes5,

I think it's because our immune system that's targeting small vessels in a physiological way, there are no natural substitutes to a medical treatment of this disease. Everyone here would...

When I was at 10mg of prednisone a day, I tapered by 1mg every 2 weeks.

Masha, are you able/allowed to try 9mg/day next? What happens?

I'm currently down to 5mg/day and I have to stop tapering...

Pete, it's so nice that you're able to be off prednisone completely. I'll follow your advice to taper .5mg a month.

I'm on Mtx, just like Brit, and it's working well for me. Other than constant...