Search:

Type: Posts; User: Dorothea

Page 1 of 3 1 2 3

Search: Search took 0.01 seconds.

  1. Thread: Cold Turkey!!

    by Dorothea
    Replies
    2
    Views
    333

    Cold Turkey!!

    Has anyone ever stopped taking Imuran, cold turkey, and what happened, if anything?

    Sent from my XT1650 using Tapatalk
  2. Thread: Mds!!

    by Dorothea
    Replies
    7
    Views
    910

    Re: Mds!!

    Yes, I was on dialysis for 2 months, my kidneys are only at 25%. That was three years ago. That's why I'm on Imuran. I'm afraid now that I have MDS it might set me up for another flare!

    Sent from...
  3. Thread: Mds!!

    by Dorothea
    Replies
    7
    Views
    910

    Re: Mds!!

    Have you had a flares?

    Sent from my XT1650 using Tapatalk
  4. Thread: Mds!!

    by Dorothea
    Replies
    7
    Views
    910

    Re: Mds!!

    I've been taking 150mgs.

    Sent from my XT1650 using Tapatalk
  5. Thread: Mds!!

    by Dorothea
    Replies
    7
    Views
    910

    Mds!!

    I'm a member of this group, I was diagnosed with Wegeners in 2013.
    I was just diagnosed yesterday with MDS(Myelodysplastic Syndromes) it's a disease of the bone marrow. I honestly believe I ended up...
  6. Thread: Leukemia

    by Dorothea
    Replies
    9
    Views
    633

    Leukemia

    Has anyone developed cancer while in remission with Imuran or any immune suppressing drugs?

    Sent from my XT1650 using Tapatalk
  7. Replies
    4
    Views
    619

    Blisters on my index finger!!!

    Has anyone ever have blisters like these with their Wegeners?https://uploads.tapatalk-cdn.com/20180920/382af017b18d973eafbe4ac97809ce43.jpg

    Sent from my XT1650 using Tapatalk
  8. Replies
    6
    Views
    712

    Re: dialysis question

    Hello,
    What percentage of kidney function does he have left? I was on dialysis for 2 months and my kidneys came back to 25% I can live the rest of my life at 25%. If I lose my kidney function I...
  9. Replies
    2
    Views
    770

    Wegeners is back!

    No Immune system and a cold!
    Has anyone had a cold while on immune
    suppressing drugs? I have a cold, What should I expect?
    Thank You!

    Sent from my BLN-L24 using Tapatalk
  10. Replies
    11
    Views
    1,904

    Re: light's a shining

    Congratulations to you! I'm happy for you!

    Sent from my BLN-L24 using Tapatalk
  11. Thread: Imuran

    by Dorothea
    Replies
    5
    Views
    741

    Thank you very much to all of you!!! Sent...

    Thank you very much to all of you!!!

    Sent from my XT1575 using Tapatalk
  12. Thread: Imuran

    by Dorothea
    Replies
    5
    Views
    741

    Imuran

    I'll be starting Imuran on January 1st. I was wondering if anyone in our group has ever been on Imuran for suppressing their immune system? If you have can you tell me if it put you in remission....
  13. Replies
    15
    Views
    1,422

    Good luck to you Jaha! How long have you had...

    Good luck to you Jaha! How long have you had Wegeners?
    Dorothea

    Sent from my XT1575 using Tapatalk
  14. Replies
    24
    Views
    2,507

    Poll: O neg. Sent from my XT1575 using Tapatalk

    O neg.

    Sent from my XT1575 using Tapatalk
  15. Replies
    6
    Views
    706

    Thank you gilders!😊 Sent from my XT1575 using...

    Thank you gilders!😊

    Sent from my XT1575 using Tapatalk
  16. Replies
    6
    Views
    706

    Thank you Pete and Kstick😁 Sent from my XT1575...

    Thank you Pete and Kstick😁

    Sent from my XT1575 using Tapatalk
  17. Replies
    6
    Views
    706

    Creatinine level

    When I left the hospital on July 27th my creatinine was at 4.8 now I'm at 3.6, I've been producing more urine. Should I be optimistic that my kidneys are on their way back?
  18. Thread: Dialysis

    by Dorothea
    Replies
    6
    Views
    671

    Hi gilders! Thank you very much for the quick...

    Hi gilders! Thank you very much for the quick response! You're input is very much appreciated. You've been so helpful😁

    Sent from my XT1575 using Tapatalk
  19. Thread: Dialysis

    by Dorothea
    Replies
    6
    Views
    671

    Dear gilders, What is your opinion on...

    Dear gilders,
    What is your opinion on peritoneal dialysis and hemodialysis? My kidney doctor suggested it would be a good option for me, I need to do more research on this. I'm still at 5% kidney...
  20. Thread: Dialysis

    by Dorothea
    Replies
    6
    Views
    671

    Thank you drz.[emoji4] Sent from my XT1575...

    Thank you drz.[emoji4]

    Sent from my XT1575 using Tapatalk
  21. Thread: Dialysis

    by Dorothea
    Replies
    6
    Views
    671

    Dialysis

    Kidney Function
    Has anyone regained kidney function after kidney involvement? My kidneys went down to 5%, on dialysis now for a month, hoping they come back. At what percentage is functional and how...
  22. Thread: Dialysis

    by Dorothea
    Replies
    7
    Views
    3,112

    I spent the whole month of July in the hospital,...

    I spent the whole month of July in the hospital, I have acute renal failure, my kidneys were only functioning at 5%! I'm also getting Rituxin Infusions, my fourth one is on the 10th. I've never been...
  23. Thread: Dialysis

    by Dorothea
    Replies
    7
    Views
    3,112

    Hi gilders, After having dialysis the first time...

    Hi gilders, After having dialysis the first time with Wegeners, did your kidneys come back?

    Sent from my XT1575 using Tapatalk
  24. Thread: Dialysis

    by Dorothea
    Replies
    7
    Views
    3,112

    Dialysis

    Has anyone had to go on dialysis with Wegeners?

    Sent from my XT1575 using Tapatalk
  25. Replies
    7
    Views
    577

    Blood Thinners

    Is anyone on blood thinners with Wegeners?

    Sent from my XT1575 using Tapatalk
Results 1 to 25 of 65
Page 1 of 3 1 2 3