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Type: Posts; User: John S

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    Re: Coronavirus and GPA

    For the last 4-5 days I have noticed a bad taste in my mouth and have been smelling strange things. I suspect this is related to my first shot of the Moderna vaccine.
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    Re: Coronavirus and GPA

    I have not any any reaction to the vaccine. My wife has complained everyday about how sore her shoulder is.
    A government web site safe.cdc.gov has contacted us each day to see if we have had any...
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    Re: Coronavirus and GPA

    I had Googled “Loyola COVID vaccine schedule” and it gave me a form to fill out. We got the emails the next day
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    Re: Coronavirus and GPA

    My wife and I received emails from Loyola yesterday morning, inviting us to schedule Covid-19 vaccinations. We had our first dose of the Moderna vaccine by 4:30 PM. Our second dose will be January...
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    Re: Coronavirus and GPA

    CDC update from Saturday

    https://thehill.com/policy/healthcare/531722-cdc-issues-new-guidance-about-vaccinations-for-people-with-underlying
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    Re: Confirmed Diagnosis

    Five years ago, family had gathered at our home a few days before Christmas to celebrate the festivities. I spent most of the time in bed with massive headaches. It got worse in the light so I stayed...
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    Re: Coronavirus and GPA

    Are any of the GPA patients also essential medical workers or in assisted living facilities? They would be the first of us inline for the vaccine.
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    Re: Coronavirus and GPA

    The proof will be in the results. I’m hopeful.
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    Re: Coronavirus and GPA

    thanks. That is informative.
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    Re: Coronavirus and GPA

    Now Iím seeing reports that Rituximab patients can get the vaccine. I sure hope that they make up their minds in the next month.
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    Re: Coronavirus and GPA

    My September infusion was 500 units. My SED rate has been slightly higher than it was under 1000 units. Other than that I have not noticed any difference.
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    Re: Coronavirus and GPA

    I saw a new report yesterday.
    “...However, these vaccines won’t be approved initially for use in people who are immunocompromised. This group, though, could still benefit from widespread...
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    Re: Coronavirus and GPA

    I spoke with Dr Alexandria VillaForte yesterday morning. She told me that all of the vaccines that are being considered in the US are OK for Rituximab users. She did say that if I’m to be vaccinated...
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    Re: Ear, Nose and Eye involvement.

    Early prednisone caused cataracts, that were removed. My eyes used to feel like insects were gnawing on the back of them. I think the Rituxin killed them. My hands had sores all over them, the...
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    Re: Ear, Nose and Eye involvement.

    I am lucky enough to be on Medicare and near great teaching hospitals. I go to Loyola Hospital in Chicago and Cleveland Clinic. Prior to diagnosis I was treated by several specialists, Heart, nose,...
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    Re: Dull right rib pain

    Hang in there. I can't relate to your issue but you have my concern.
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    Re: Flu shot or not during COVID 19?

    I’m getting the heavy duty shot on Monday.
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    Re: Lowest dose of Rituxan for Wegener's ?

    I was just reduced from 1000 to 500. The latest infusion was early September. I have been 0 prednisone for over a year.
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    Re: Confirmed Diagnosis

    Dr. Villa Forte told me that my over reaction to exercise is probably not related to GPA. It really doesn’t matter what causes it.
    I recently bought an electric assist bicycle. I wear my heart rate...
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    Re: Confirmed Diagnosis

    I get Rituxin today. For the last month I have had three separate days of fevers. Each bout was after going on a bike ride. Temperatures up to 103+. No infection, no Covid, I’ve just read that fevers...
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    Re: Confirmed Diagnosis

    Once again I am a week away from Rituxin infusion and I find headaches and fatigue have been on the increase. I’m going to get this infusion in Chicago rather than Cleveland Clinic.
    I hope that the...
  22. Thread: Ear Wax

    by John S
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    Re: Ear Wax

    ďDonít put anything smaller than your elbow in your ear.Ē
    I donít remember who told this but itís good advice. I use hydrogen peroxide and a spray bottle called ďElephant EarĒ. There are several on...
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    Re: Telling my story

    Welcome to GPA Highway. May your trip be long and fruitful.
  24. Thread: Statistics

    by John S
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    Re: Statistics

    Covid 19 has more issues than fatality rates. Some long term conditions to survivors are starting to emerge. The best thing is to avoid catching it.
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    Re: Retuxin infusion

    Like Masha, I canít sleep right after the infusion. The next day Iím fine. In a few weeks, I it kicks in and keeps the symptoms away.
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