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Type: Posts; User: carriej22

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  1. Replies
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    Sounds all so similar. I just wanted to come here...

    Sounds all so similar. I just wanted to come here to wish you guys well and that this can be beat. I am 27 now, was diagnosed at 22. First two years were rough. After my final round of Rituxan it...
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    Thanks so much guys :D

    Thanks so much guys :D
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    Thanks guys! It feels so long ago but at the same...

    Thanks guys! It feels so long ago but at the same time it doesn't :)

    It's nice to look more like myself again. When I smile, my cheeks are definitely a bit rounder than they used to be, but most...
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    Carrie's Success

    Hi Folks,

    It has been almost 4 years since diagnosis. I finally feel confident enough about my health that I feel like I'm at a point where I can say that I think I've won, and I hope to keep on...
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    Thanks guys! I also remember being super sick in...

    Thanks guys! I also remember being super sick in 2012. I do not want to be that sick ever again. It's like a whole year of my life is like a black spot. I don't have a lot of memory from that year at...
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    Hi! Yes, I am still here! I pop back and...

    Hi!

    Yes, I am still here!

    I pop back and forth sometimes, and some of you have me on Facebook so you see me from time to time :)

    Just wanted to update you guys healthwise. I have done pretty...
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    I had RTX only once (4 infusions) in May/June of...

    I had RTX only once (4 infusions) in May/June of 2012. I have not had any since. Initially, my doc wanted to put me on a maintenance program but due to my work I asked if we could wait it out.

    I...
  8. Thread: Side-effects

    by carriej22
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    I was 22 when I received diagnosis... Within a...

    I was 22 when I received diagnosis... Within a few months I was back to work, and now I am pretty much living normally. I mean, there isn't a cure so you always have to deal with some aspects but...
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    Tendon issues

    Hi Guys,

    I feel like at one point and time there was a drug I was on (can't recall which) that my doc warned me of Achilles tendon injury. I have been off most drugs (except still taking imuran,...
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    We have atleast that. I'm only about 8 hours from...

    We have atleast that. I'm only about 8 hours from Boston. I'm along the coast so we always get hit hard. There are some places in my backyard that are close to 10 feet.

    The financial situation is...
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    Hi folks! Yes I am still around! Hope you all...

    Hi folks! Yes I am still around!

    Hope you all are feeling well.

    I have just been doing my thing. Monthly labs and the daily grind of work, sleep, repeat.

    I have found out I have low...
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    Thanks guys. I guess I will just wait and see...

    Thanks guys. I guess I will just wait and see what happens with the testing.
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    Oh don't get me wrong, I eat meat... Just not...

    Oh don't get me wrong, I eat meat... Just not very much fish (not a fan) and red meat because here, beef is very expensive. We eat a lot of chicken and that sort of thing.

    I do have a second...
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    They did not. She added a bunch of stuff onto my...

    They did not. She added a bunch of stuff onto my bloodwork in a few weeks time, and in the mean time has me on a very protein oriented diet... Which normally isn't something I eat a lot of. Red...
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    Low Hemoglobin

    Well, this is a new one for me.

    I went in yesterday and discovered I have low hemoglobin, pale cells, and she said something about iron but I can't for the life of me remember.

    She has put me...
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    I am pretty good stamina wise right now. I am...

    I am pretty good stamina wise right now. I am currently working two jobs. One is a desk job but the other I'm on my feet. As long as things don't deteriorate too much I should be running around the...
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    I was planning on having the Pharmacy do me up my...

    I was planning on having the Pharmacy do me up my medication for the week or possibly 10 days to play it safe. They do it up in little bubbles. A lot of people have it done for trips. I will have to...
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    Vacationing with Wegeners

    Hi Guys,

    While I have never had much of a desire to travel since being diagnosed with Wegeners a few years ago, one of my friends is getting married down south. Not exactly sure where yet,...
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    As some of you noticed I haven't really properly...

    As some of you noticed I haven't really properly accepted Phils death yet. Phil and I talked very often, instantly bonding over being Canadians a few years ago... I am so sad. I was having such a...
  20. I didn't read every post, but my toes turned...

    I didn't read every post, but my toes turned black and my hands still go numb and painful. They told me that the hand thing is neuropathy and luckily as soon as I received treatment my toes fixed...
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    I have been crying all day about something else,...

    I have been crying all day about something else, and I couldn't understand why it was affecting me so badly. My husband came home, and told me to stop crying about the silly thing I was crying about....
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    Phil I hope you feel better soon. You always seem...

    Phil I hope you feel better soon. You always seem to have such a hard time. I am glad that you have Alysia there with you though. Keep us posted and we are all thinking about you.
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    Fifty shades of grey is a little raunchy even for...

    Fifty shades of grey is a little raunchy even for me LOL. I wouldn't say my writing is quite as explicit as that.

    It's funny... Because I am not a huge fan of reading those type of books, but I...
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    You can for sure do your own writing now, it's a...

    You can for sure do your own writing now, it's a blessing and a curse. Everyone can write, which means there are endless books; which means a lot of competition! A great book can go undiscovered.
    ...
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    Yes Ann, there has been no move to take me off...

    Yes Ann, there has been no move to take me off Imuran. I bean Imuran in October of 2012. Will probably be on it for... Ever? I don't know. There has never been talk of removing me from Imuran.
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