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  1. your not freaking out for nothing, it is scary...

    your not freaking out for nothing, it is scary taking all the meds we have too
    but here is the best help and support u can get
    and fatigue is the main thing at 6 tablets hon
    good luck xxx
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    Well I've been to the docs, I'm now on that...

    Well I've been to the docs, I'm now on that stomach protecting stuff, and also iron tablets 3 x a day as very anaemic and got to have a camera up my bum ( yuck yuck ) as hospital not sure what's...
  3. Thread: Pain in legs

    by Jayne 14
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    I was told pain in the legs was due to the pred...

    I was told pain in the legs was due to the pred we take & not drinking enough water , it's horrible I know
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    I'm not taking any stomach protection - assuming...

    I'm not taking any stomach protection - assuming that's what you asked about
    the pain I get is of the chart , thankfully I've pain killers ( co coda mol ) to help but they only mask the pain
    im at...
  5. Thread: Omg pain!!!

    by Jayne 14
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    Honey you need to call your doctor , pain like...

    Honey you need to call your doctor , pain like this is intolerable & you need something to help get it under control
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    Now it appears I may have a stomach ulcer ,...

    Now it appears I may have a stomach ulcer , awaiting a camera down throat & scans
    bloody steriods
    s slugs from nose are least of my problems
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    I'm assuming your talking about Ce Ce our...

    I'm assuming your talking about Ce Ce our neopolitan mastiff !!
    yes about 75 lbs or so
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    Welcome Sandy i think as everyone's suggested u...

    Welcome Sandy
    i think as everyone's suggested u need to find a doctor with wegners knowledge / experience
    but for general support help & advice this is the place
    good luck xx
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    Extra large plugs / slugs ???

    The crazy things I blow from my nose have got quite a lot bigger of late , literally bigger than my little finger
    is this usual ???
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    The fatigue we feel is hard for anyone to...

    The fatigue we feel is hard for anyone to understand . Getting close friends / family to read the spoon theroy helped . And understanding my body too .
    Big day = next day sleep / recover .
    Pace...
  11. Thread: Miricles

    by Jayne 14
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    NicShaf Wow wow wow Welcome to you& your...

    NicShaf
    Wow wow wow
    Welcome to you& your beautiful miracle . He's perfect !!!!!
    Great uplifting positive news
    Wegners isn't the end . You've shown that 💕💕💕


    Sent from my iPad using Tapatalk
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    Chris I am so sorry to hear this Sending you...

    Chris
    I am so sorry to hear this
    Sending you prayers & love at this difficult time
    And thanks to your support : your mum is now at peace


    Sent from my iPad using Tapatalk
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    Good for you Alicia Getting As too I've...

    Good for you Alicia
    Getting As too
    I've always jumbled the odd word so a chair / table mistake is nothing !!!


    Sent from my iPad using Tapatalk
  14. Thread: MTX question

    by Jayne 14
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    Thanks Pete Thanks Mishb I had a feeling it'll...

    Thanks Pete
    Thanks Mishb
    I had a feeling it'll be stay as it is, was just thinking out loud really
    I miss my old energy levels !!! But I'm sure that's not all from MTX & a lovely gift from the...
  15. Thread: MTX question

    by Jayne 14
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    MTX question

    So I've been on a dose of 20 mg of MTX since Christmas , going to my hospital app next week
    What is likely to happen next folks ??? More of the same lower or higher dose ??
    I do get fatigue that...
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    We are here always That's when u know ...

    We are here always
    That's when u know


    Sent from my iPad using Tapatalk
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    I am sending you my lovely lady a very large hug...

    I am sending you my lovely lady a very large hug
    Some people find grief to hard to deal with
    Love as u shared is hard to mourn , we are here for you both
    Be strong my friend xxx


    Sent from...
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    Thank u all I'm feeling much better , more fruit...

    Thank u all
    I'm feeling much better , more fruit eaten - with active yoghurt every morning
    Movacal taken
    More water every day : and the pain has gone & no more tears , will never let it get so...
  19. Thread: M t x

    by Jayne 14
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    Thanks guys I only currently take folic acid 1 a...

    Thanks guys
    I only currently take folic acid 1 a week ( not sure of dose )
    And I am totally wiped out / tired for 2 days so will look into dose of folic acid & may try MTX in 2 doses same day

    ...
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    Thinking of u both And saying a prayer too ...

    Thinking of u both
    And saying a prayer too


    Sent from my iPad using Tapatalk
  21. Thread: M t x

    by Jayne 14
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    532

    M t x

    Any advice folks
    I take 20mg weekly but have seen on here people suggest taking it in 2 halves??
    How does this work , the next 2 days I'm wiped out with fatigue and wondering if this would improve...
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    Thinking of you Hugs & prayers x Sent from...

    Thinking of you
    Hugs & prayers x


    Sent from my iPad using Tapatalk
  23. Thread: wiki wegs

    by Jayne 14
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    Annekat When I said better I meant my nose...

    Annekat
    When I said better I meant my nose actually works a bit now
    I can smell a bit now & then & actually breathe through it : before treatment I was a total mouth breather
    It's still odd...
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    Cheers guys I had let the meds to avoid it slip...

    Cheers guys
    I had let the meds to avoid it slip : I'd gotten complacent & then as you can guess total nothing
    Drz have started on Movacal sachets that my doc prescribed ( had run out )
    Pete : I...
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    Constipation ???????

    Does anybody else really struggle with this ???
    I am struggling , not going very much & in getting horrible pain in my side that drives me mad - taking painkillers to numb it which I'm sure also...
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