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Type: Posts; User: goldenjen

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    Re: Hair Loss.....

    For me, I thought I was losing hair and it was falling out at the root and thinning that way, but it was actually just becoming very brittle and breaking. So if that if happening in your situation,...
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    Re: My experience with SGS

    I had almost the exact same diagnosis experience. Docs thought I had asthma until they realized all the wheezing seemed to come from my upper airway/throat. If that is happening, y’all, ask for a...
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    That would be great! I'll message you :) ...

    That would be great! I'll message you :)


    Sent from my iPhone using Tapatalk
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    My story and intro

    Hey everyone! I'm Jennifer and live in NC. I was diagnosed with WG in April of 2011 after about 6 years of unrelenting sinus infections and tons of antibiotics, surgery, a diagnosis of asthma and...
  5. Thread: Cellcept

    by goldenjen
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    I have been on it (1000mg per day) since last...

    I have been on it (1000mg per day) since last November and it is helped a lot. I am also still doing ritux infusions every 6 mo, but before it was just infusions and I was kinda at those...
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