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Type: Posts; User: maria garcia

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    Thank you. Only a uranalysis was done as a normal...

    Thank you. Only a uranalysis was done as a normal routine check and all of the above you wrote are positive. Monday we have the appointment with her rhemy. I just have the bad habit of getting the...
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    Michelle i didn't know you were diagnosed w...

    Michelle i didn't know you were diagnosed w lymphoma! How are you? Please take care of yourself we love you here!
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    Kidney involvement

    I would like to know those who have had kidney involvement how did you realize it in the beginning? And what do you check for now?
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    Has anyone kept in touch with CarrieG? She never...

    Has anyone kept in touch with CarrieG? She never wrote again! I wonder how her son is doing.
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    Has anyone kept in touch with CarrieG , her son...

    Has anyone kept in touch with CarrieG , her son diagnosed with Wegners. I see she never wrote again! im wondering how her son is doing?
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    Phil

    Ive been in shock since i got home this afternoon and read the post on FB. Phil was there for me since my daughter was diagnosed. i always knew who to go to when i had any worries. He was a a sweet...
  7. Phil relax!!!!

    Phil relax!!!!
  8. What is weed beneficial for?

    What is weed beneficial for?
  9. Phil relax!!!!

    Phil relax!!!!
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    Thank you Phil. I'm ecstatic and nervous. Finally...

    Thank you Phil. I'm ecstatic and nervous. Finally got some descent insurance.
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    Vasculities specialist Dr.Langford.

    I finally have a national insurance, Hooray my daughter can finally see a vasculities specialist. I'm thinking about Carol Langford at Cleveland Clinic at Ohio. Has anyone seen her? Please give me...
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    I'm from Miami fl. I heard there is a Cleveland...

    I'm from Miami fl. I heard there is a Cleveland clinic in Weston. My daughter sees Dr. Chacon but I am also one to take her to a vasculities specialist. I
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    Christina is on 25 mgs and only weighs 95 pounds...

    Christina is on 25 mgs and only weighs 95 pounds on a good day.
  14. Thread: Sangy

    by maria garcia
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    Sangy

    I'm back on forum I have never forgotten all the help I received here. Regarding help Sangye always had great answers to our questions and I haven't seen any post from her.
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    I remember Dagger hope Holly has kept getting...

    I remember Dagger hope Holly has kept getting better. Kami I believe I know this girl she has MPA like my daughter. By the way MPA and wegners are very much alike except for the granulomas. Same...
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    Phil I'm praying for your recovery. You have made...

    Phil I'm praying for your recovery. You have made a big difference in this forum. I was just thinking how much I learned in this forum. Thanks for always answering my dumb questions. I read back now...
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    Rip Al in the short time you were in the forum...

    Rip Al in the short time you were in the forum his wisdom taught me so much. And his kindness touched my heart.
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    What would be a maintenance dose?

    What would be a maintenance dose?
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    Thanks everyone for sharing info on this,I feel...

    Thanks everyone for sharing info on this,I feel better.
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    MTX maximum length of treatment

    Anyone knows what is the longest period a person can take medication MTX?
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    Biopsy of eyelid. There was some scar tissue and...

    Biopsy of eyelid. There was some scar tissue and no other doctor had found. She started with MTX and prednisone after a year they tapered her of the prednisone. Now she is on 25mg Mtx And folic acid....
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    My daughter first and only symptom so far has...

    My daughter first and only symptom so far has been to the eyes. She had red eyes diagnosed as episcleritis would not get better with eye drops after six months and four eye doctors to figure out why...
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    Marcus im so happy for you. Have they told you...

    Marcus im so happy for you. Have they told you when your meds will be tapering off?
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    Yes phil I think thats what we are planning on...

    Yes phil I think thats what we are planning on doing. Tomm. She goes to her regular doctor and we will discuss.
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    Sangye yes she has no other symptom at the moment...

    Sangye yes she has no other symptom at the moment so it looks like she is on indused medication remission. The doctor said she would never be able to come of the meds and go on remission without the...
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