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  1. Replies
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    No I don't use the mouthwash. My dentist said it...

    No I don't use the mouthwash. My dentist said it was Herbal tea. I stopped using that for a while but no difference to the staining. Apart from the meds I am on now there is nothing I am eating or...
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    Dodi maybe her age gave false confidence that...

    Dodi maybe her age gave false confidence that perhaps she was stronger and less fragile / ill than some of their other patients. I had C-diff some years ago and in my case it was thought to have been...
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    Dodi I am so sorry for your tragic loss. What a...

    Dodi I am so sorry for your tragic loss. What a shocking thing to have happened. I have had issues with bowel obstructions for many years but have been very lucky in that my specialist knows exactly...
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    Dear Alysia. I am grateful for all the support...

    Dear Alysia. I am grateful for all the support and advice you and and others gave me when I first landed here in quite a mess. Just remember there are times when we can help others, times when we...
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    Thanks Mrtmeo, Everything helps. Yes I am...

    Thanks Mrtmeo, Everything helps. Yes I am thinking I just need to be patient. with no active disease I should feel confident that no damage is being done and it's all a matter of healing now. Which...
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    Probably all linked to the Wegener's

    Probably all linked to the Wegener's
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    Hi Mrtmeo. I fell into the old trap. Typed an...

    Hi Mrtmeo. I fell into the old trap. Typed an entire page and pressed the reply instead of post quick reply button and lost the lot so this is an abbreviated version lol
    1. Blood tests are all...
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    I remember when I first joined this forum in...

    I remember when I first joined this forum in early February this year. Phil gave me a lot of good advice and I found his progress thread and remember reading right through it. It inspired me to start...
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    Loisann. I recently had a gastroscopy and was...

    Loisann. I recently had a gastroscopy and was told I had severe reflux. I was totally stunned as I didn't feel it and also I have been on tablets for it for years. Apparently it is possible for the...
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    Hi mrteo. Just saw this thread. I have had sinus...

    Hi mrteo. Just saw this thread. I have had sinus issues for many years the developed post nasal drip and shortly afterward a most nasty cough that went on for years. Only found out last year that one...
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    Well I started two things together. Increased the...

    Well I started two things together. Increased the Somac to 40mg 2x a day (had been taking 40 mg 1x a day for nearly 5 years) and a steroid nasal spray and it seems to be improving. The doctor told me...
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    mrtmeo I have been on Somac (which is for the...

    mrtmeo I have been on Somac (which is for the stomach acid) for almost 5 years and thought it had helped but apparently not. It didn't stop the stomach ulcers becoming chronic. I guess we now know...
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    thanks Mr. Meo. I will check out your...

    thanks Mr. Meo. I will check out your information.
    In my case I have been on more regular Valium this year since treatment started than ever before when I would take maybe one valium once or most...
  14. Problem is Cindy, this doctor didn't think I...

    Problem is Cindy, this doctor didn't think I needed to see her again. Another specialist not so easy to get hold of although her secretary is very caring and efficient. She offered last time to ask...
  15. Thanks Cindy and drz. I did a bit more research...

    Thanks Cindy and drz. I did a bit more research and had some replies on the Australian FB group page so in the end I felt comfortable enough to start the dose.
    a) The recommended dose for adults is...
  16. Thrush / Candida in the system and Prednisolone

    I was told yesterday that last week's Gastroscopy showed that I had some thrush (candida) in the oesophagus and in the stomach. I had been given fungilin lozenges to dissolve in my mouth but have now...
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    Thanks Bob. Sounds feasible re the Prednisolone....

    Thanks Bob. Sounds feasible re the Prednisolone. Makes it difficult to figure out how to prevent it :( especially how to stop it going down into the stomach and oesophagus. I ended up so far with 2...
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    Thrush in the mouth and digestive tract

    A few weeks ago I had a rather white tongue with red blotches. GP thought it was thrush and prescribed a liquid I had to swish around in the mouth and told me "You can swallow it" so said the...
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    Never celebrate too soon. Night before last had...

    Never celebrate too soon. Night before last had one of the worst episodes of chest pain ever and it radiated to the left ear. Same sort of spasm/tightness feeling I used to get with gallstone attacks...
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    Just repeating post here that I posted on the...

    Just repeating post here that I posted on the Australian FB Wegener's forum that could be of interest to others struggling with Diabetes who are on steroids.

    Forgot to mention something that my...
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    Time for an update here. I managed to keep...

    Time for an update here.

    I managed to keep decreasing the pred and by the time my next Rheumy appointment was due, I was down to 20 mg. Glad now i pushed ahead. He said blood tests looked...
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    In case anyone reads this in the future, as this...

    In case anyone reads this in the future, as this thread was supposed to be all about digestive tract issues I thought now 6 months after starting it, would be a good idea to add some final comments....
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    Continuing on from the last post ... Nurse told...

    Continuing on from the last post ... Nurse told me yesterday (had to fast for a gastroscopy) that the body will produce extra glucose when it hasn't had anything to eat for a while which explains to...
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    Thanks for sharing drz. I am finding things still...

    Thanks for sharing drz. I am finding things still very confusing. I have now increased the Insulin in the morning to 24 Units (up from the initial 8 at lunchtime) and to 28 Units for lunch (up from 6...
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    the Edema for me has not been a problem since it...

    the Edema for me has not been a problem since it flared up very badly when I started Pred early this year. Over the years I have struggled with a badly swollen left foot ankle and lower leg. However...
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