Search:

Type: Posts; User: gunnyl

Page 1 of 4 1 2 3 4

Search: Search took 0.01 seconds.

  1. Thread: 7 Years In

    by gunnyl
    Replies
    3
    Views
    557

    7 Years In

    I'm a little over 7 years into this battle and so far I am keeping the wolf at bay. I've gotten very in tune with my body and changes and have become very adept at knowing early when it's about to...
  2. Replies
    15
    Views
    1,628

    Re: Diet & suppliments

    You should research this site and consult a doctor before taking supplements
    https://www.opss.org/
  3. Replies
    178
    Views
    58,602

    Sticky: Re: How to know when you're having a flare

    For me, I feel like I ran into a brick wall. My ears go through pressure changes even though I had tubes put in for the Eustachian damage. I'll get some nose bleeds, extreme general malaise, pain in...
  4. When I was first diagnosed I, it presented in my...

    When I was first diagnosed I, it presented in my lungs and I was coughing up significant amounts of blood. I have gone through Citoxan, Methotrexate and Imuran mixed with Prednisone. I tend to...
  5. Thread: Weak Nails

    by gunnyl
    Replies
    8
    Views
    972

    Weak Nails

    Does anybody else have a problem with weak nails? I used to have pretty strong nails but the last couple months my nails rip at an unbelievably annoying pace. I clip them very short but they still...
  6. Thread: methotrexate

    by gunnyl
    Replies
    11
    Views
    1,386

    I went straight from MTX to Imuran and cold...

    I went straight from MTX to Imuran and cold turkey off the MTX. You do still need to take the Folic Acid for 4 - 6 Months after stopping the MTX though.
  7. Replies
    15
    Views
    1,156

    Do you like Indian Food?

    Seems some research is being conducted and our disease is almost non-existent in certain parts of Asia. Turmeric has been shown to seriously reduce inflammation and that is a trigger if not a cause...
  8. Replies
    20
    Views
    1,679

    My Ophthalmologist and Rheumatologist will tell...

    My Ophthalmologist and Rheumatologist will tell you that mine are related. Also if you are on long term prednisone use then you should be getting the pressure checked in your eyes regularly as it...
  9. Replies
    20
    Views
    1,679

    I love this disease!

    Went for a checkup with my Ophthalmologist yesterday and came home with Steroid Drops. Seems my flare I was dealing with over the weekend extended to my eyes. I went blind for 7 days causing my...
  10. Thread: Reality Check

    by gunnyl
    Replies
    79
    Views
    21,297

    My labs look clean across the board. But I...

    My labs look clean across the board. But I recently came off Prednisone and within two weeks I couldn't make a fist in the morning, all of my joints were painful and swollen and I started getting...
  11. 22--POLY- & MONO-CLONAL ANTIBODIES USED FOR WG (Anybody else seen this?)

    22--POLY- & MONO-CLONAL ANTIBODIES USED FOR WG: (Note - Most not used extensively). A family of drugs coming onto market that promises to...
  12. Replies
    79
    Views
    13,716

    I didn't have any severe hair loss while on...

    I didn't have any severe hair loss while on Cytoxin but my hair growth slowed down substantially. Since I switched to Imuran it has taken off again and made up for lost time. As a guy I kind of...
  13. Annekat, My wife found him and she emailed...

    Annekat,

    My wife found him and she emailed him several times and he always replied. He gave me permission to give his contact information to my Dr's as well in case they wanted to consult with...
  14. Hope, You've been on Cytoxan for 14 Months? ...

    Hope,

    You've been on Cytoxan for 14 Months? And they are keeping you on it for another 6? I have somebody you should email and just ask questions if you want or give his information to your...
  15. Replies
    18
    Views
    2,193

    Carie, glad to hear that Imuran is working for...

    Carie, glad to hear that Imuran is working for you too. I haven't had the hair loss thing but if I do I'll be happy and my wife will be mad because I'd prefer to shave my head but she hates it. I...
  16. Replies
    18
    Views
    2,193

    Latest Update: My C Anka's told the story...

    Latest Update:

    My C Anka's told the story that I was definitely in the middle of a flare even though my other labs were normal. Have been on Imuran for 4 weeks and am decreasing the Prednisone...
  17. Replies
    18
    Views
    2,193

    Thanks drz!

    Thanks drz!
  18. Replies
    18
    Views
    2,193

    Went to the Dr a couple days ago; she says it was...

    Went to the Dr a couple days ago; she says it was a Flare and doubled the Pred. That plus 2 days bed rest and I feel like a new Man! Just hope this lasts! Labs came back Clean!

    The Journey...
  19. Replies
    18
    Views
    2,193

    Dirty Don, Day two after being cranked up on...

    Dirty Don,

    Day two after being cranked up on the Pred dosage I already feel much better but am going to follow orders and stay in bed one more day to give it time to work it's magic. But I think...
  20. Replies
    18
    Views
    2,193

    UPDATE: Saw my Rheumy today and got good news...

    UPDATE:
    Saw my Rheumy today and got good news and bad news. Fatigue is not a drug reaction but rather the symptom of a bad flare. She ran another panel of labs and kicked the Pred up to 20mg to get...
  21. Replies
    18
    Views
    2,193

    I'm on Imuran 50mg twice a day, 100mg Plaquenil...

    I'm on Imuran 50mg twice a day, 100mg Plaquenil and 10mg Prednisone. I'm wondering if the combination of the plaquenil and imuran is too much for me to handle, they both are known to cause fatigue. ...
  22. Replies
    18
    Views
    2,193

    Imuran Side Effects

    Okay,

    Started Imuran about 1 1/2 weeks ago. Am suffering from severe fatigue right now. I am transitioning from MTX to Imuran so I am on 100mg of Plaquenil and 10mg Prednisone in addition to...
  23. Replies
    11
    Views
    1,413

    Michelle, Plaquenil is mitigating the joint...

    Michelle,

    Plaquenil is mitigating the joint pain and I don't have any side effects that I'm aware of. MTX isn't working though and I had to come back up on Pred. Took my TMPT test yesterday,...
  24. Replies
    11
    Views
    1,413

    Carriej22, I have been on MTX for 6 Months...

    Carriej22,

    I have been on MTX for 6 Months and Prednisone off and on to go with it. My Dr's are more worried about the Prednisone than anything. My Dr. deemed me Prednisone dependent as I tend...
  25. Replies
    20
    Views
    2,985

    Manalolana, We'll keep you in our prayers...

    Manalolana,

    We'll keep you in our prayers that you will be in remission before you're wedding day and that you stay that way! Hope you can get this thing under control and keep it that...
Results 1 to 25 of 91
Page 1 of 4 1 2 3 4