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  1. Replies
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    Shocking news. R.I.P. Phil

    Shocking news. R.I.P. Phil
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    In wish you the best of luck CgM

    In wish you the best of luck CgM
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    Thanks Michelle. It is like a new lease of life....

    Thanks Michelle.
    It is like a new lease of life. As I say fingers crossed all will be well. I gave up smoking 5 years ago which, I can tell you was a big achievement for me and giving up pred is way...
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    I have been pred free for a week now following a...

    I have been pred free for a week now following a slow taper. Diagnosed in April 2009, it's been a long hard road. Fingers crossed I will have no adverse effects as I have been looking forward to...
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    Checked :glare: . Everything in perfect working...

    Checked :glare: . Everything in perfect working order. Haven't heard of that problem before!!
  6. Thread: Bad flu

    by Widthofacircle
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    Thanks Don I think you are exactly right. Each...

    Thanks Don
    I think you are exactly right. Each time I get flu I get symptoms such as sore and runny eyes and ears popping. Only problem is the flu seems to last forever since I was diagnosed. Before...
  7. Thread: Bad flu

    by Widthofacircle
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    1,615

    Thanks Michelle Good to see so many long term...

    Thanks Michelle
    Good to see so many long term members (and newbies ) still here. Yeah hopefully it is just the flu.It is doubly bad though when it id MAN flu with Wegs thrown in for good...
  8. Thread: Bad flu

    by Widthofacircle
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    Hi Debra Last bloodwork done 3 months ago were...

    Hi Debra
    Last bloodwork done 3 months ago were clear. Next bloods at end of April so fingers crossed:thumbup:
    Brendan
  9. Thread: Bad flu

    by Widthofacircle
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    1,615

    Bad flu

    Hi Everybody
    Have not been posting here for quite a while but I check in regularly to see what's going on. It's 5 years now since I started out on this rocky road that is Wegeners. I am reasonably...
  10. Hi Rif That is the same dose as me. I take 3,000...

    Hi Rif
    That is the same dose as me. I take 3,000 mg Cellcept and 5mg pred. This seems to keep me stable. I have been on this dose for 18 months now having gone through the horror story that began in...
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    Hi Stephen You may have missed an earlier post...

    Hi Stephen
    You may have missed an earlier post from me in this thread telling you of my knowledge of other Wegs sufferers in Ireland. In addition to that I have also heard of a 12 year old girl in...
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    Hi Stephen My grandfathers name was John Joe...

    Hi Stephen
    My grandfathers name was John Joe Sheehy. I don't know of any relatives living there now. His family left when he was quite young. I have heard of one other person with Wegs attending the...
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    Hi Stephen Brendan here from Dublin. Good to...

    Hi Stephen
    Brendan here from Dublin. Good to come across an Irish person here and from Kilmallock, my grandfather came from there. Sorry to hear you have been diagnosed with Wegeners. I was...
  14. Hi Natalie Not to spoil the favourite songs...

    Hi Natalie
    Not to spoil the favourite songs thread but noticed you are on exactly the same maintenance drugs I am on but you have obviously been on them much longer than I have, being diagnosed in...
  15. Did you get to listen to any Nick Cave? He is an...

    Did you get to listen to any Nick Cave? He is an acquired taste... a bit like Leonard Cohen on speed haha
  16. Gotta be David Bowie for me and a bit of Nick...

    Gotta be David Bowie for me and a bit of Nick Cave
    Brendan
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    I get this all the time. Constantly hoarse and...

    I get this all the time. Constantly hoarse and clearing the throat and blowing nose. Otherwise fine.
    Brendan
  18. Very sad news. Condolences to Al,s family and...

    Very sad news. Condolences to Al,s family and loved ones.
    Brendan
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    For me it has been eyes,ears,joints,...

    For me it has been eyes,ears,joints, sinuses,lungs and kidneys.
    Brendan
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    Hi Louise Thankfully I have not experienced...

    Hi Louise
    Thankfully I have not experienced saddle nose so will just say Hi and welcome
    Brendan
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    Been on 3000mg for about 18 months now. I take...

    Been on 3000mg for about 18 months now. I take 1500 first thing in the morning and the balance around dinner time. I have had no real problems
    Brendan
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    Hi Yvonnea I live in Ireland but my eldest son...

    Hi Yvonnea
    I live in Ireland but my eldest son lives in Koping in Sweden.
    He is a musician and loves his life there
    Brendan
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    Well spoken Al. Reet, sincere condolences on...

    Well spoken Al.
    Reet, sincere condolences on the loss of your Dad and like Al, I would like that you stay in touch with us here in the future.
    Brendan
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    Sangye Jack had a brilliant sense of humor. I...

    Sangye
    Jack had a brilliant sense of humor. I remember when I first joined here being uplifted by his straight talking in relation to dealing with WG. He was so direct with his descriptions of the...
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    Happy New Year Friends!!!! Brendan

    Happy New Year Friends!!!!
    Brendan
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