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Type: Posts; User: Razie

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  1. Replies
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    Re: Hello from new member

    Ruby, thank you for this information. It is really helpful and helps de-stress a bit :smile1:

    Razie
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    Daily life considerations and precautions

    Hey all, being newly diagnosed with GPA, Iím still trying to figure out what daily precautions to take or consider. For example, wearing a mask everywhere, asking people who come to my home to wear...
  3. Thread: Avacopan

    by Razie
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    29,976

    Re: Avacopan

    jmq, my understanding is that Avacopan, which is sold under the name Tavneos, affects a different pathway than Rituximab. It is not a biosimilar for Rituximab. I had 2 infusion treatments with...
  4. Thread: Avacopan

    by Razie
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    29,976

    Re: Avacopan

    Thanks drz,
    Do you know if folks are able to replace prednisone with avacopan, or is it more supplemental?
    Thanks!
    Razie
  5. Thread: Avacopan

    by Razie
    Replies
    35
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    29,976

    Re: Avacopan

    Yikes! That doesn't sound very promising. So sorry to hear you had such a bad reaction.
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    Re: Hello from new member

    Thanks Pete, it's nice to know there's company in a place no one wants to be.

    I've had 2 infusion treatments with the Truxima first one lasted about 6 hours, the second lasted about 5 hours (which...
  7. Thread: Avacopan

    by Razie
    Replies
    35
    Views
    29,976

    Re: Avacopan

    Hello all,

    I have recently been diagnosed with GPA. Had 2 rounds of Truxima, and am tapering off prednisone, currently at 20mg/day. My rheumatologist has suggested Tavneos/Avacopan with the hope...
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    Hello from new member

    Hi all,

    I've recently been diagnosed with GPA. I'm still in an active state, recently completed 2 rounds of infusion therapy with Truxima. Still trying to learn about GPA and how to deal with it...
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