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  1. Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I never got the ďvaxĒ and ended up getting Covid in late August of 2021.. they gave me the monoclonal antibodies and I pulled through well. September of 2021 I had my last RTXN infusion and have been...
  2. Sticky: Re: How to know when you're having a flare

    It is interesting how differently it effects individuals. I had a round of RTX once a week for 4 weeks and then every 6 months. My ANCA was still positive at the time I contracted COVID and was...
  3. Sticky: Re: How to know when you're having a flare

    Just to make sure Iím on the same page.. RTX is Rituxan, correct? How many initial doses did you have? My body couldnít handle AZA and was tapered off prednisone after a few months of RTX..
  4. Sticky: Re: How to know when you're having a flare

    All of my other blood work is good as well.. its a bit harder for me to tell since it affected my aorta and hadn't reached the other organs yet. I also have 4 protruding discs in my neck and...
  5. Sticky: Re: How to know when you're having a flare

    I'm no longer getting RTX infusions. My ANCA numbers have been negative for the past 9 months. This is why I was curious to the groups thoughts.
  6. Sticky: Re: How to know when you're having a flare

    How is a flare different from a relapse? I was labeled as "in remission" in Oct-Nov last year. Since I have had good blood work, but recently having a bit of joint and muscle pain again along with...
  7. Re: Some questions my doctor hasn't answered (well a lot of questions LOL)

    How often do flare ups happen after remission and does that cause the need for the return of Rituxan?
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    Re: Covid vaccins and WG

    I had my antibodies tested after I had COVID. I contracted the virus literally 5 months after my last infusion and was a month away from the next. I was given the monoclonal antibodies and recovered...
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    Re: Third Vaccine

    I have not had the vaccine but contracted Delta in Augusta and was given the antibody therapy. I caught it right at one month before my Rituxan infusion. I decided to test for antibodies and was...
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    Re: Third Vaccine

    Wow.. before my diagnosis I had some issues with my eyes. My main issue was inflammation of my aorta. I was told the combo of that and wegs was rare, but definitely not as rare as yours. How long was...
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    Re: Third Vaccine

    Were you in remission before the jab?
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    Re: Avacopan

    Wow.. that is extremely disappointing. It is all about the money!
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    Re: Cyclophosphamide (Cytoxan)

    How was your blood work, like your CRP, ANCA, and PR3?
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    Re: Any Weggies in Atlanta?

    Iím in southeast TN.
  15. Re: Tinnitus got significantly worse after 1st Rituxan infusion, thoughts?

    Did you take the vaccine or just from having COVID?
  16. Re: Tinnitus got significantly worse after 1st Rituxan infusion, thoughts?

    Could the brain inflammation be a result of the Rituxan? I know there are conditions that can develop from it, but not sure if that is one. Do they have you on an antibiotic as a prophylaxis?
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    Re: A great doctor wants our help

    I will say some doctors unwillingness to look into other options than the vax is causing many, not just in wegs world, to lose faith and trust. Knowing our conditions and the ramifications I find it...
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    Re: Third Vaccine

    Good to know... i've been having some tendon/muscle issues after treatment and wasn't sure what it was. They injected 40mg of prednisone and didn't notices these issues till after treatment. Thank...
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    Re: Third Vaccine

    Is this a side effect from one of the treatments? I have had interesting and different types of muscular pains after treatment..
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    Re: A great doctor wants our help

    Do they want honest opinions? Iíve only been a member for a short time but see many posts of Doctors pressing the vaccination and not looking into alternatives for people with rare and complicated...
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    Re: Third Vaccine

    I got Covid a little over a month ago and had the Regeneron. I think anyone like us on Rituxan would fair better to avoid more vax shots and go with Regeneron until there is more data. Slippery slope...
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    Re: Covid vaccins and WG

    Ask the RA about Regeneron if you get COVID.. It helped me tremendously
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    Re: Third Vaccine

    I'm like you only sharing my experience. But as I was discussing in another post, I decided not to "vax" for a few reasons. I tested positive for COVID a few weeks back and was given the antibody...
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    Re: Surviving COVID-19

    Happy to hear you are doing well now.. First off, I did not get any of the vaccinations for multiple reasons. However, I got COVID a few weeks back and my Rheumatologist told me that if I ever...
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    Re: Third Vaccine

    Look into the antibody treatment, Regeneron. It helped me quite a bit.
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