Search:

Type: Posts; User: Arleta

Page 1 of 2 1 2

Search: Search took 0.00 seconds.

  1. Replies
    18
    Views
    4,229

    Re: How are you doing ?

    Doing ok. Had Covid once for sure (delta) and probably omicron, too. Very thankful for the vaccine…I’ve had all 4 doses. Still in remission, sort of. Just need to be careful not to overexert…hard...
  2. Replies
    240
    Views
    96,865

    Re: Coronavirus and GPA

    I am a breakthrough COVID-19 survivor. My husband and I were both vaccinated in February/March. In July we went to visit some of my college friends in Iowa. I checked before to make sure everyone...
  3. Thread: Wegners in ears

    by Arleta
    Replies
    14
    Views
    11,035

    Re: Wegners in ears

    I had some hearing loss before GPA, but lost more after, especially in my left ear. I have sinus, lung, and kidney involvement. I have been in remission about 11 years. The hearing loss has...
  4. Thread: Shingles

    by Arleta
    Replies
    0
    Views
    1,795

    Shingles

    Has anyone gotten shingles after getting the Shingrix vaccine? I got my first injection earlier this month. I had a sore arm, headache, some stomach ache, but it went away after a few days. One...
  5. Replies
    8
    Views
    3,375

    Re: Flu shot or not during COVID 19?

    I am a retired teacher and have gotten flu shots every year since childhood. I have had GPA for about 12 years and have had flu shots every year with no problems. I also now get pneumonia shots as...
  6. Replies
    11
    Views
    31,681

    Re: Imuran Side Effects

    I have taken Imuran for about 9 years with no big problems. How I feel each day varies. Sometimes I do have some of the issues that you list, but most of the time I do ok. It is a maintenance drug...
  7. Thread: Dsap

    by Arleta
    Replies
    4
    Views
    2,593

    Re: Dsap

    There's not much you can do. I see a dermatologist twice a year. She checks for precancerous spots and recommends using a moisturizer. I've tried a couple prescription things, but nothing really...
  8. Thread: Dsap

    by Arleta
    Replies
    4
    Views
    2,593

    Dsap

    Does anyone else have the rare skin condition called DSAP? I've had it for a long time...probably 30 years....way before Wegener's. It has gotten worse since Wegener's, though. I was reading an...
  9. Thread: Insomnia?

    by Arleta
    Replies
    15
    Views
    21,680

    Re: Insomnia?

    Thanks, Masha!

    Sent from my SM-T800 using Tapatalk
  10. Thread: Insomnia?

    by Arleta
    Replies
    15
    Views
    21,680

    Re: Insomnia?

    Thank you for your response! Unfortunately, these are things I have been doing for years with no help. I've also been under a doctor's care for several years, had a sleep study done, etc. ...
  11. Replies
    5
    Views
    21,109

    Re: My hands are losing circulation while sleeping

    I experienced this one time recently, also while in bed. It also went away upon moving around. I am not on any prednisone at this time. My feet and up my legs to my knees are always numb, toes and...
  12. Thread: Fructured Toe

    by Arleta
    Replies
    31
    Views
    25,207

    Re: Fructured Toe

    I once had an allergic reaction to contrast dye that presented like your symptoms. They had to flush it out of my system. Perhaps you are allergic to the pain med they gave you.

    Sent from my...
  13. Replies
    10
    Views
    9,649

    Re: My first flare since diagnosis

    So sorry to hear this. I also take Imuran, but 150 mg per day. I have tried to lower it a couple times, but symptoms come back. Next month will be my 10 year anniversary of the on come of symptoms....
  14. Replies
    9
    Views
    18,955

    Re: Sinus Congestion

    I use Flonase. It works well for me. I tried to stop using it during the summer, but I got clogged up at night.

    Sent from my SM-T800 using Tapatalk
  15. Replies
    15
    Views
    41,008

    Re: A Tiredness Upon Waking And At Night:

    My neurologist had me get a Fitbit about three years ago when I complained of poor sleep. I have tried all the usual things that help promote good sleep.... no caffeine, cool bedroom, limit screen...
  16. Thread: Joint Pain

    by Arleta
    Replies
    5
    Views
    19,449

    Re: Joint Pain

    I have taken Cymbalta for joint pain (knees mainly) for several years. Nothing else worked---injections, medications. I still have some pain, but it helps.

    Sent from my SM-T800 using Tapatalk
  17. Replies
    25
    Views
    134,610

    Poll: Re: Epstein Bar Virus Curiosity

    No

    Sent from my SM-T800 using Tapatalk
  18. Replies
    6
    Views
    16,019

    Re: Tips or tricks for a cold?

    Thank you for the work you are doing there. We have a neice, her husband, and 3 small children who lost their home in Santa Rosa.

    I have had the most success when I use a product that contains...
  19. Replies
    13
    Views
    43,813

    Rachel, I have taken Imuran since going off...

    Rachel, I have taken Imuran since going off cytoxin. I lost most of my hair when on cytoxin, but have had no hair loss with Imuran. I have been on it about 8 years now with no significant side...
  20. Thread: New!!

    by Arleta
    Replies
    9
    Views
    7,413

    Welcome, Mandy! Hope you will find friends and...

    Welcome, Mandy! Hope you will find friends and helpful information here! We are in it together!
    Arleta


    Sent from my SM-T800 using Tapatalk
  21. Replies
    33
    Views
    18,807

    Thanks for the info. I will check with my...

    Thanks for the info. I will check with my rheumi!

    Sent from my SM-T800 using Tapatalk
  22. Replies
    33
    Views
    18,807

    Wow! You got a shingles shot? I thought we...

    Wow! You got a shingles shot? I thought we couldn't get that since it is a live virus.

    Sent from my SM-T800 using Tapatalk
  23. Thread: Sick & Tired

    by Arleta
    Replies
    89
    Views
    37,643

    God be with you as you search for answers and...

    God be with you as you search for answers and solutions!

    Sent from my SM-T800 using Tapatalk
  24. Replies
    33
    Views
    18,807

    I was actually diagnosed 8 years ago. At this...

    I was actually diagnosed 8 years ago. At this time I am doing pretty well, all things considered. I have some permanent damage from the bloodclots which affect my legs (swelling) and other things...
  25. Replies
    33
    Views
    18,807

    It was to recover from Wegener's. I had a hard...

    It was to recover from Wegener's. I had a hard onset of it. Started with what I thought was a cold and then traveling arthritis. Then I became really out of breath and I was coughing up blood. ...
Results 1 to 25 of 49
Page 1 of 2 1 2