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Hi Pete,

Thanks for all of the treatment information. It sounds like my mother and you share some of the same symptoms. Unfortunately, we did not realize she was as ill as she was and her kidney...

Hi Anne,

We're in Ottawa, Ontario and the RTX would be covered by the health care system up here. They pay for anything like that. RTX was mentioned, but for some reason, the treatment plan...

Pete -- What dose of Septra do you take. I believe my mom is taking the 400/80 Septra (Bactrim) 3 x weekly. She is on 10 mg. of prednisone at the moment, although they want to taper down to less --...

Anne,

When my mom was first diagnosed, there was some talk of RTX, but I can't remember why that was not chosen. i now wish that had been the choice as I have a friend whose 90 year old mom has...

[QUOTE=annekat;109656]Bev, glad to see some responses. You should find some posts about really bad pred experiences in the archives, also your doc probably knows one should be tested for a certain...

Hello all,

This is my first post here on the Wegener's Talk forum. My mother was diagnosed with Wegener's in mid-August 2016. Until her diagnosis, she was an extremely active, independent 84...