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Hi staystronglivelong Im Barry I was diagnosed 4 years ago had 10 infusions of cyclo was only supposed to be 6.I went in to remission a little over a year ago and am pred free now .

Thanks for the welcome Doug

Thanks Dee x

Thanks janNaz I hope so too

Hi gutless I had a biopsy on my face just below my right eye where a mass had accumed they entered through my mouth where my lip and gum met I was in the grip of wg at the time it was sore...

Thanks Kirk we could all do with some comic relief

Thanks elephant

Hi Geoff your story started a little like my own I can relate to the preds I have more stretch marks than my wife and I am only 28.I was diagnosed in 06 and have been in remission over a year but it...

Thanks eileenv for the warm welcome

Hi Marta thanks for the warm welcome,not so sure about the wisdom and experience !!!:confused1:

Hi JanW thanks for the welcome.

Hi Jack thanks for the warm welcome.Looking forward to dissusions.

Hi sangye they used high doses of preds and cyclo I had 10 infusions then switched to retux and methotrexate the mass on my brain just stopped growing and never got bigger am off preds for the moment...

Hi Brooke thanks.I started on preds and cyclo infusions was only supposed to have 6 ended up with 10.Now I am getting retuxamab every 6 months and methotrexate weekly and am finally off the preds

I was diagnosed with w.g in sept 06.My name is Barry and I am 28 .For me it started with flu like symtoms and a fever ,a week later I got an abcess on my arm.My doc thought I had a chest infection so...