Search:

Type: Posts; User: Alysia

Page 1 of 20 1 2 3 4

Search: Search took 0.08 seconds.

  1. Replies
    118
    Views
    28,287

    Re: Celebrate how far we have come!

    Dear drz,

    Thank God the rtx treaemt went well and that you can control your diabetes even if it is complicated.

    My first rtx IV also lasted about 8-9 hours and this is how it should be...
  2. Replies
    13
    Views
    743

    Re: Reactions to Covid-19 vaccinations

    Dear drz,

    So sorry, I hoped it was not a flare... My heart goes out to you...

    It sounds that you have good docs with a good plan of treatment. So relieved to know that you have a machine to...
  3. Replies
    175
    Views
    31,013

    Re: Happy Birthdays Thread

    Happy Birthday, my beautiful friend @mishb :wub: May your birthday be as awesome as you are :wub:
    @pberggren1 and I love you and wish you many blessings :wub:
  4. Thread: Hello there.

    by Alysia
    Replies
    5
    Views
    645

    Re: Hello there.

    Welcome to the forum.

    CT once a year sounds ok. But blood tests should be done more often, first every month and later every 3-4 months.

    If I remember correctly we had here someone who had...
  5. Re: Rituximab associated hypogammaglobulinemia:

    Thanks for the important info.

    My Igg and Igm have dropped below the normal so for now I am not allowed to get rtx. My dr prescribed me Leflunomide, which works well for me, although my wg is...
  6. Replies
    13
    Views
    743

    Re: Reactions to Covid-19 vaccinations

    Sorry for the flare, drz. Maybe it is the result of reducing the pred to 6mg ? I flared when I tried to reduce the pred from 7mg to 6.5mg every other day, after only 4 days.

    I got the pfizer...
  7. Replies
    175
    Views
    31,013

    Re: Happy Birthdays Thread

    Happy Birthday me2 :hug3:

    May your birthday be filled with joy, peace and love :thumbsup:

    Thank you for being here with us all the way. God bless you.
  8. Replies
    23
    Views
    6,937

    Re: Another Warrior has lost his Battle!

    A very dear weggie friend of @pberggren1 and I, and many others here, passed away a week ago, Alice from Dothan, Alabama. She was only 46 years old and died from cancer. She was sick with wg since...
  9. Replies
    11
    Views
    2,777

    Re: Possible GPA - nasal deformity

    Hello Rae and welcome to the forum.
    Sorry it took my a while to answer.

    Your nose doesn't look like a saddle nose.

    Do you have any other symptoms ? Like joints pains, gums bleedings, rash,...
  10. Replies
    7
    Views
    608

    Re: UTI and antibiotics after RTX infusion

    I almost allways have UTI's after rtx and get ciprodex (antibiotics) for 10 days at least, sometimes more, because of being more immmune compromised after rtx.
  11. Replies
    232
    Views
    31,784

    Re: Coronavirus and GPA

    Hello, my friends,

    Sorry for not being here for some time. I've missed you all :hug2:

    I also got the first shot of the Pfizer anti covid vaccin last Thursday, December 31 - best way to end...
  12. Replies
    72
    Views
    17,771

    Re: Covid vaccins and WG

    Sounds tough... I am sorry. Sending you prayers.

    How are you doing ?

    I did have "pneomonia" which was wg flare. Had it in 2 or 3 flares.
  13. Replies
    72
    Views
    17,771

    Re: Covid vaccins and WG

    I hope that you have recovered ?

    Maybe it was some food poisoning ? If I remember correctly, you have MC like I do, so we are very sensitive to many kinds of foods.
  14. Replies
    7
    Views
    2,788

    Re: Wegeners charity

    This is the link for the donation thread:

    https://www.wegeners-granulomatosis.com/forum/threads/3394-Donations?highlight=Donations


    @andrew is doing a wonderful work here, without any...
  15. Replies
    72
    Views
    17,771

    Re: Covid vaccins and WG

    This one is more promising then any vaccin and they have started the trial in UK:

    https://www.bbc.com/news/health-55022288

    Quote:

    A possible alternative to a vaccine, for people without...
  16. Replies
    72
    Views
    17,771

    Re: Covid vaccins and WG

    I have found 2 articles in the facebook vasculitis UK group.

    The first - things are complicated...
    ...
  17. Replies
    72
    Views
    17,771

    Re: Covid vaccins and WG

    me2 and NatriceRomeo - sending you prayers for an easy and perfect recovery. Can you, please, share what are your symptoms ? WG and covid might be too similar. With every morning coughing I would ask...
  18. Replies
    10
    Views
    5,592

    Re: Infections from mosquito bites

    So it must be the smile :biggrin1:
  19. Replies
    72
    Views
    17,771

    Covid vaccins and WG

    Hi, how are you doing out there ?

    I suggest we will collect here all the questions and medical info we can find on this subject, like professional articles or if someone has the chance to discuss...
  20. Replies
    10
    Views
    5,592

    Re: Infections from mosquito bites

    Now that I think about it, I was also not beaten by mosquitos for many years now. Maybe it's the pred :flapper:
  21. Replies
    26
    Views
    10,789

    Re: Ear, Nose and Eye involvement.

    Welcome to the forum. How can we call you ?

    In my humble opinion, your WG is too active for mtx or Imuran, and needs a more powerful med like rituximab.

    Can you consult a WG specialist ?
    ...
  22. Replies
    7
    Views
    3,595

    Re: G'day Mate.. From Australia,Land down under

    Welcome Dutchie and congratulations for your triplets :hug3:

    Like Pete wrote above, I do have a saddle nose because of WG but I am not going to fix it soon or probably ever. One needs to be in...
  23. Replies
    972
    Views
    133,768

    Re: pberggren memorial thread

    Today, 6 years ago, my beautiful Phil flied high with his Batman wings, to spend eternity with Our Lord.


    I wrote to him:


    Sweetie,


    I can't believe it has been 6 years since you went...
  24. Replies
    972
    Views
    133,768

    Re: pberggren memorial thread

    Thank you, Michelle and Anne, from the bottom of my heart, for your beautiful and comforting words, and for being here all the way. I love you.
  25. Replies
    17
    Views
    3,207

    Re: Coping with stress on current pandemic

    Please read this one:

    https://abcnews.go.com/Health/cdc-death-report-fauci/story?id=72759172

    Dr. Fauci was the one who established the treatment protocol of ctx plus pred for weggies more then...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4