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    We got one for my Dad, I think it's a good idea...

    We got one for my Dad, I think it's a good idea if you're taking a blood thinner like coumadin. My Dad has to be on that for DVT blood clots. I have read on here that others are taking that or...
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    Thanks LisaMarie for the additional info. My Dad...

    Thanks LisaMarie for the additional info. My Dad is still doing well on the treatments and has even been able to travel a little bit. This is the longest he has gone between hospital stays in quite...
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    Sharon Chung, MD (UC San Francisco) She is a VF...

    Sharon Chung, MD (UC San Francisco)
    She is a VF Rheumatologist, one of the few in Northern California.

    Dr. Pedro Ruiz at California Pacific Medical Center is also very good and sees a lot of WG...
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    Well, my Dad just got his third infusion of IVIG...

    Well, my Dad just got his third infusion of IVIG and continues to sing it's praises. It may not work for everyone but he is very happy to finally find a treatment that has him back to his 'new...
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    For jenjenn711 - I'm in a similar situation with...

    For jenjenn711 - I'm in a similar situation with my Dad, who has had WG for many years. After his last big flare and hospitalization my parents decided to travel to the 'Big City' for help and it...
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    Thanks LisaMarie, that is very good info. My Dad...

    Thanks LisaMarie, that is very good info. My Dad does get the benadryl prior to the infusion and I'll remind him to keep hydrated. He says that after the treatment he has a lot more energy. The...
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    While supporting and advocating for my Dad in...

    While supporting and advocating for my Dad in various hospitals I've heard doctors say he has 'limited involvement' Wegener's or variations on that theme. It gets me furious, because I know...
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    Immune Globulin

    Just wondering if anyone else is getting Immune Globulin treatments? My Dad just had his second treatment (he'll be doing that via IV every 3 weeks for a while) and he seems to be responding very...
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    Sticky: WegenersDisease.org : Lists top Wegner's...

    WegenersDisease.org : Lists top Wegner's hosptitals, FAQ, news, information regarding medications and treatments.
    http://www.wegenersdisease.org/
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    I've seen the 5 year figure as well and agree...

    I've seen the 5 year figure as well and agree that it's a stock number that get's thrown around for a lot of serious diseases. I've also read that sympton free remission stretches can be up to 20...
  11. A list of top Wegener's hospitals and the...

    A list of top Wegener's hospitals and the doctor's in each are listed here: Best Hospitals for Wegener's
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