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    Re: New Here - Possible GPA with Nasal involvement

    Yes our GPs act very much as a gatekeeper and they refer on to the services that they think can help. I have called my GP today and he is going to write in response to my previous ENT appt to see if...
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    Re: New Here - Possible GPA with Nasal involvement

    The problem I have is that the docs don’t seem to be listening to me. My GP has written me off as being anxious. I totally agree that whatever is affecting my breathing has caused anxiety. I’d say...
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    Re: Possible GPA - nasal deformity

    Thank you. It was an ENT consultant who I saw about my symptoms who ordered the last round of bloods to look for vasculitis. Iíve also had sinus and chest CTs but am awaiting results from those. The...
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    Re: Possible GPA - nasal deformity

    Thank you very much for your reply me2. Sorry I think I should have explained the first comment better. I meant that the doctor was unthoughtful in their comments to you about your supposed...
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    Re: Possible GPA - nasal deformity

    Gosh, what a unthoughtful thing to say to someone. I agree that differences add character and my nose wouldn’t bother me at all if I wasn’t struggling with my breathing. It actually feels like the...
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    Re: Possible GPA - nasal deformity

    Thank you for your reply. I don’t have any other symptoms that would lead me to think I have GPA apart from night sweats. I also have had pretty much constant muscular type pain in my left trapezius...
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    Re: New Here - Possible GPA with Nasal involvement

    I asked my GP about a sleep study because I felt like I have apneas. He said I didnít fit the bill because Iím not overweight and donít snore chronically. Other doctors have said thatís rubbish and...
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    Re: New Here - Possible GPA with Nasal involvement

    Yes this does concern me a little but with the septal scabs being something I have dealt with for years I would have expected one of the tests to show some elevation, but they are not even remotely...
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    Re: New Here - Possible GPA with Nasal involvement

    Thank you Anne.
    I have had results from my specific vasculitis tests - are they called anca tests and they have come back negative. I’m still awaiting CT scan results. My ESR and C-reactive protein...
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    Re: Possible GPA - nasal deformity

    Thanks Pete.

    Just to add, when I say I’ve always had a slight dip, it’s probably only for the last 9 or so years.

    I also currently have a strange feeling of pressure over the opposite nasal...
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    Possible GPA - nasal deformity

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    Hi all, I’m currently having investigations done for GPA after experiencing scabbing on my septum for many years (probably 8-10 years). No other symptoms in that time, no fatigue,...
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    Re: New Here - Possible GPA with Nasal involvement

    Thank you drz. In all honesty Iím praying that it turns out not to be GPA. I have been reading a lot of diagnosis stories on here and you are all so brave coping with all the terrible symptoms that...
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    New Here - Possible GPA with Nasal involvement

    Hi everyone, my nameís Rae. I'm currently having tests for possible Wegener's because of scabs on my septum that i had for years and some symptoms that I've been having for the past 6 months...
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