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  1. Re: Bloods Negative, doctor doesn’t want to do nasal biopsy.

    I totally agree.
    Or; if it isn't GPA, then find out what it is that is causing this, don't just write me off.

    Find someone who will look for some answers, before it's too late to get the answers
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    Re: Happy Birthdays Thread

    Thanks Pete. I hope you are keeping safe and well
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    Re: Celebrate how far we have come!

    Sending love and hugs your way drz, from Oz :hug1:

    I hope the RTX gets you back to feeling a little more normal, in the next few weeks.

    Be kind to yourself, and remember that you have done it...
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    Re: Happy Birthdays Thread

    You are so very special, Miss Alysia. You never forget or miss the birthday messages.
    My birthday was awesome, just as you are :wub:
    Thank you for always remembering.
  5. Thread: Wegners in ears

    by mishb
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    Re: Wegners in ears

    It was sinus first for me, and then I lost total hearing in my left ear.
    6 months after WG treatment started, the hearing started to return, and now the loss is only mild, and only noticeable when...
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    Re: Covid vaccins and WG

    You should not flare with stopping MTX for one week.
    MTX has a body life of 6 weeks, with it reducing in strength every week.
    This means that if you miss taking it for a week, then you still have...
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    Re: Happy New Year Old Friends

    Love to you both and to everyone else, from Oz

    What a crazy year we have all been through and continue to go through.

    Geoff you are so right about marta and her words, and you are also correct...
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    Re: Covid vaccins and WG

    I hope you have shaken the flu like illness now, Kirk, and that you are on the road to recovery.

    Two episodes in 4 months is really strange though, considering the amount of precautions that you...
  9. Thread: The Four Stages

    by mishb
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    Re: The Four Stages

    6. who is Santa :unsure:
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    Re: Question via email: Falls and tremors

    I don't have coronary disease, tremors or osteoporosis, but I do have Rheumatoid Arthritis and Osteoarthritis

    I think my husband would be very surprised if a few days went by, without me dropping...
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    Re: Thank You Everybody!

    Great to hear from you Chadwyck and wonderful to see you no longer have to say Ouch, except for minor issues.

    I'm sorry that you have seen one of our dear members has passed away. It's always a...
  12. Thread: Wegeners charity

    by mishb
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    Re: Wegeners charity

    Hi Peter

    Australia also have their own Vasculitis society. Refer to the link below

    Australia and New Zealand Vasculitis Society (anzvasculitis.org)
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    Re: Covid vaccins and WG

    Oh Kirk, I'm sorry to hear that you have been knocked about - by something.
    I certainly hope that it is not Covid.

    I was wondering myself, about how they would be able to test correctly if your...
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    Re: Infections from mosquito bites

    I haven't been on pred for nearly a year now, and the mosquito's still don't like me :confused1:
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    Re: Infections from mosquito bites

    Mosquito's haven't gone near me for the past 8 or 9 years.

    I was putting it down to Methotrexate, but I'm pretty sure that it is the Plaquenil (Hydroxychloroquine) keeping them at bay.

    Either...
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    Re: G'day Mate.. From Australia,Land down under

    Dutchie you certainly do have rareness following you

    I'm so glad your wife and babies are doing well.


    Yes, the scar tissue on the right side, closed back over probably within 6 weeks of the...
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    Re: Ear, Nose and Eye involvement.

    Hi Dalatingod

    Sorry, I have been on Methotrexate for the past 9 years and it has worked for me, so there was no need to change to anything else.
    Imuran would be an alternative to methotrexate. ...
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    Re: Ear, Nose and Eye involvement.

    Hi dalatingod and welcome to the forum.

    This is a great place to find, when you are first diagnosed and are told that it is rare. You think that you are the only person in the world with it, then...
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    Re: One year in, greetings from Australia

    Hi Peter and welcome to the club that no one wanted to be a member of, but glad that we found it.

    Another Aussie.
    Thankfully, for me, this means that our doctors are on the ball and becoming more...
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    Re: G'day Mate.. From Australia,Land down under

    G'day Dutchie and welcome to the group that none of us really wanted to be in, but are very thankful that it is here for us.

    Congratulations on the birth or your babies :hug3:

    Stress plays a...
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    Re: Wegener's and surgery

    For the surgery on my nose I had to be in remission for 2 years, and my pred be at 5mg or less.
    On saying this, my rheumy did say, that if it was an emergency, they wont be waiting for anything,...
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    Re: pberggren memorial thread

    Who would have thought that we would be thankful for such a rotten disease, bringing us all together, and the friendship and loves that are formed from having the said "rotten disease".

    Such sad...
  23. Thread: Telling my story

    by mishb
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    Re: Telling my story

    Hi Gunny, great to hear from you again.

    I'm so glad you have found a knowledgeable specialist.

    Good luck with the symposium
  24. Thread: Site statistics

    by mishb
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    Re: Site statistics

    Wow these figures are crazy, and amazing at the same time.

    Thank you for keeping this forum safe, Chief :smile1:
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    Re: Recently diagnosed with GPA

    I'm still here lovely lady, just more of a reader at the moment.
    It's a very busy time of the year for me, work wise.

    Here is a happy dance, just because in this crazy time, we need something ...
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