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  1. Thread: Italy

    by greenjeep
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    Italy

    Anyone on this forum from Italy? (And speak english) I would like to chat with you!

    Sent from my SM-A102U using Tapatalk
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    Re: Coronavirus and GPA

    I believe the vaccine caused a mini-flare with me. I had the second dose about 2 and 1/2 months ago and have felt bad since. I have had daily headaches since where I rarely had headaches before....
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    Re: Morning Sickness (Not Pregnant)

    Kinda late here, but just read this. Sometime after my dx in 2010, I began to have morning sickness most mornings. I don't believe I've ever actually thrown up, but sometimes I really have to fight...
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    Re: A Tiredness Upon Waking And At Night:

    Ran across this the other day and thought of everyone on this forum. Check it out....
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    Re: A Tiredness Upon Waking And At Night:

    has there been any change in your fatigue? Mine is definitely worse right now. I think mine fluctuates with the weather sometimes. I also think stress causes me to become exhausted.
    I've talked to...
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    Re: Fructured Toe

    fructure... is that a mix between 2 different words or simply a typo?
    just kidding, just a little humor on an otherwise gloomy day.

    I'll be your huckleberry.
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    Re: A Tiredness Upon Waking And At Night:

    sorry, checked out for a while. the shot brought my T levels back within range but if it has helped with the fatigue, it has only been slight.
    it can cause swelling in prostate, and increased risk...
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    Re: A Tiredness Upon Waking And At Night:

    I have similar symptoms. if I don't get to bed by 10 most nights I enter into a zombie-like State. like I'm so tired my brain starts shutting down even while awake. mornings are the same, extremely...
  9. Thread: Cellcept

    by greenjeep
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    I relapsed on methotrexate myself. my rhumy...

    I relapsed on methotrexate myself. my rhumy changed to Imuran. still going with it with success so far.

    Sent from my SAMSUNG-SM-J320AZ using Tapatalk
  10. Thread: not myself

    by greenjeep
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    some really good advice from you all. it really...

    some really good advice from you all. it really hit the mark. I'm not so depressed now but when it hits, it devastating. thank you all for the encouragement.

    Sent from my SAMSUNG-SM-J320AZ using...
  11. Thread: not myself

    by greenjeep
    Replies
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    3,559

    not myself

    Sorry to always be the downer. But I am just struck today of how much I have changed over the past 7 years since dx. I am not myself anymore. I am a weggie.
    every decision I make has GPA...
  12. Thread: sadness

    by greenjeep
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    Thank all for your encouragement. You know, I...

    Thank all for your encouragement. You know, I have always been fascinated with "the power of positive thinking" type stuff, and the examples that are given in different world religions and self help...
  13. Thread: sadness

    by greenjeep
    Replies
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    1,679

    sadness

    everyone on this forum, for the most part, seems to have positive attitudes through this winding road we're on. that's one reason I visit, so I can get a dose of that!
    however, does anyone ever...
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    only as old as you act... right. I tell some...

    only as old as you act... right. I tell some people I work with that I'm older than they are (even though they were born before me) cause this disease has taken years off my life.
    a stroke leaves...
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    Debbie, I do MRI for a living. I'm no Dr, but a...

    Debbie, I do MRI for a living. I'm no Dr, but a tech. I do not know your age but the microvascular disease is a fancy way of saying aging. it's nearly on 100 percent on the MRI I do on people over...
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    abnormal PR3 and c- ANKA

    there is another thread along these lines I just looked at, but did not want to hijack it.
    I too have come back with a startlingly high ANKA. Pr3 was 176, about 3 times what it was in 2012 when I...
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    I too have slacked a bit in posting to this...

    I too have slacked a bit in posting to this forum. It has gotten me thru some rough patches - just don't check as often when I'm not feeling bad. (Sorry) but I have had a while slew of new issues...
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    Only problem there is I have osteopenia due to...

    Only problem there is I have osteopenia due to steroids so I'm supposed to take calcium. Vicious cycle.


    Sent from my iPhone while pondering the inevitability of a plurality of intersecting...
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    I would say I eat less greens/spinach than...

    I would say I eat less greens/spinach than normal. My urologist warned me against salt in any form and to drink more water. Both of these are a challenge for me.


    Sent from my iPhone while...
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    Well, just wanted to update and possibly warn...

    Well, just wanted to update and possibly warn others.
    With all of the bloodwork and whatnot this episode kicked up, they found my ANCA was positive.
    I have been in remission and on azathioprine...
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    Gary Sounds logical, and easy. But I have to...

    Gary
    Sounds logical, and easy. But I have to constantly remind myself of this.


    Sent from my iPhone while pondering the inevitability of a plurality of intersecting realities.
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    I was originally dxd in 2010. It was contained in...

    I was originally dxd in 2010. It was contained in me sinuses. Did oral cytoxan for 6 mos and got better. Went to methotrexate but never was able to take a full dose due to how it changed my liver...
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    Never had this issue but I wanted to chime in...

    Never had this issue but I wanted to chime in because I have never met another weggie face to face and I think you are the closest person to me on this forum - that I know about! I'm in Lubbock, tx....
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    I know sinusitis can cause a dull ache in the...

    I know sinusitis can cause a dull ache in the upper teeth, but I too had a horrible toothache a couple of months ago. Just about the time I was going to gave it looked at it went away completely. I...
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    I have osteopenia but I cannot remember if it was...

    I have osteopenia but I cannot remember if it was from cytoxan or steroid use. (I also have memory loss it seems). I take vit D but my nephrologist suggests lifting weights - even if light weight. I...
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