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Type: Posts; User: bdawg212

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    Re: Azathioprine - Mycophenolate mofetil

    I actually was on Leflunomide for less than a month. Had a bad reaction to it and had to come off. :( Sorry, forgot to mention that. I was so wary to start it because of the staying in your system...
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    Re: Azathioprine - Mycophenolate mofetil

    I get terrible GERD from the meds. My rheumy prescribed Prevacid. Works great. Hope you get better soon!!

    Sent from my SM-G955U using Tapatalk
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    Re: Azathioprine - Mycophenolate mofetil

    I have major nose crusting. There's actually a hole through my septum now. An ENT prescribed a sesame oil concoction made at the Mayo Clinic and shipped to me that really has helped the crusting, and...
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    Re: Azathioprine - Mycophenolate mofetil

    I was on myco (CellCept) for about six months for Wegeners a few years ago. Had no positive effect on my inflammation and made me straight up MEAN. I asked my rheumy to take me off of it because the...
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    Re: Hydroxychloroquine?

    Hi, I have had WG since 2010. Kidney and lung involvement in the beginning, now just mainly joints and sinuses and high CRP and Sed rate. I was almost in remission in early 2017 on Prednisone and...
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    Thank you blessed, I appreciate the support....

    Thank you blessed, I appreciate the support. Methotrexate didn't work for me either, so I can feel your pain there. I hope the Rituxan works for you and you get your stenosis under control. Take care...
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    Yeah, I didn't say specialists aren't great. I...

    Yeah, I didn't say specialists aren't great. I just said I tried one and I love my current doctor. I was mostly wondering if anyone had problems with failed Rituxan. Thank you anyway.
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    I don't even remember his name. It was in 2010. I...

    I don't even remember his name. It was in 2010. I have always been ANKA neg. The rheumy/immunologist I have now is the only one I have found that really cares about me and my case because I am not a...
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    My doc now is a rheumy and I love him. I'm just...

    My doc now is a rheumy and I love him. I'm just saying, I tried to talk to a WG specialist and he wasn't interested in my case.
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    I saw a WG specialist at the University of...

    I saw a WG specialist at the University of Wisconsin Hospital, one of the best in the Midwest, and he didn't want anything to do with me. He didn't even call me back. When I went back to see him...
  11. Thread: Cellcept???

    by bdawg212
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    Cellcept???

    Has anyone been prescribed Cellcept for WG/GPA? It's supposed to be maintenance after remission is achieved, but my doc has prescribed it with high pred after Rituxan has failed to produce any...
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    Good luck with the infusions. I had four in a...

    Good luck with the infusions. I had four in a row, two weeks apart, and never had a bad reaction of any sort. However, it doesn't seem to be working for me. I don't have kidney or lung involvement...
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    lol Love the shrugging description. My...

    lol Love the shrugging description. My appointments consist of my doctor looking at my chart, heavily sighing, looking at me, heavily sighing, dropping his head into his hands as he reads my test...
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    Thanks Pete. I hope you're right. Since my first...

    Thanks Pete. I hope you're right. Since my first infusion was two months ago, my doctor was expecting some improvement by now. The fact that the inflammation went UP instead of DOWN is very...
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    Feedback -- Rituxan Failed

    Hey everybody, I just joined today, and I'm in need of some advice or input if you wouldn't mind.

    I have had WG/GPA (whatever we're calling it today [emoji6]) since June of 2010 right before my...
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