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    Re: I don’t feel sick

    I can admit that I really suck at this exercise part. I am just lazy.
    I could do it if I wanted too, and do when I'm travelling for holidays, but when I'm at home, forget it.

    Great post Pete....
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    Re: Another Warrior has lost his Battle!

    Our beautiful Lilly/Lisa. Gosh it was so hard to call her Lisa on fb after knowing her on here as Lilly.
    What a wonderful person, and such a sad loss to us all.

    Yesterday another Weggie passed...
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    Re: Another Warrior has lost his Battle!

    I was very shocked to read that Jaha/Jana had passed away.
    I thought it was the same day as Phil but of course in Oz, we are a day ahead, so I wasn't sure.

    Jaha did have back surgery a few weeks...
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    Re: The Legend Leonard Cohen

    Hi Bindy,

    It's not really Leonard Cohen, but a wonderful man named Jack, that we all adored, and he adored Leonard Cohen, so used his picture as his avatar.
    He was the fountain of all knowledge...
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    Re: Weggie's Lounge Update

    That's really interesting Tom, thank you for finding and sharing this information.

    I do not have RTX because it's my T cells that are wired wrong, not my B cells, however I have thought for a...
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    Re: Early Stages GPA Treatment

    Upper respiratory for me, (sinus, ears, eyes and throat) including joint and muscle pain.
    I have never had rituxin, just methotrexate and prednisolone (steroid) and plaquenil (hydroxychloroquine)
    ...
  7. Re: Mum recently diagnosed with GPA This is my first post and I would love some advic

    Hi Bindy. Welcome to the club that no one really wants to enter. I glad you found us.

    I also had a very old rheumatologist in Melbourne (who has now retired), and I have found a young 30...
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    Re: Happy Birthdays Thread

    Thank you so much Christina :love:

    I had a wonderful day, and we are all safe and well in Oz.
    I hope you are also keeping well, and out of trouble
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    Re: Bad Smell and taste During GPA

    Hi Arj,

    Sorry you have been diagnosed with GPA, but glad that you have received a diagnosis, because now you are on the right path for treatment.

    I lost my sense of smell, about 10 years ago,...
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    Re: Happy birthday wegeners-granulomatosis.com!!

    Happy birthday to this fantastic forum and the fantastic people on here.

    We have seen many people come and go, and have lost and mourned a lot of people along the way.
    Some people have left a big...
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    Re: Happy Birthdays Thread

    Thank you again, for another year of birthday wishes.
    For us, growing older and having more birthdays is a blessing, and one that I am glad to still be having each year.
  12. Thread: Forum activity

    by mishb
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    Re: Forum activity

    2010 for me too, after about a year of lurking, and not thinking I would ever have anything to say or participate in a conversation.

    Gosh how wrong a person can be :lol::lol::razz:
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    Re: How are you doing ?

    I am well thank you

    Off pred now, and down to 10mg MTX and 200mg Plaquenil
    Nose & coughing is still the bugbear, but we continue to go on.

    As always
  14. Re: Bloods Negative, doctor doesn’t want to do nasal biopsy.

    I totally agree.
    Or; if it isn't GPA, then find out what it is that is causing this, don't just write me off.

    Find someone who will look for some answers, before it's too late to get the answers
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    Re: Happy Birthdays Thread

    Thanks Pete. I hope you are keeping safe and well
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    Re: Celebrate how far we have come!

    Sending love and hugs your way drz, from Oz :hug1:

    I hope the RTX gets you back to feeling a little more normal, in the next few weeks.

    Be kind to yourself, and remember that you have done it...
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    Re: Happy Birthdays Thread

    You are so very special, Miss Alysia. You never forget or miss the birthday messages.
    My birthday was awesome, just as you are :wub:
    Thank you for always remembering.
  18. Thread: Wegners in ears

    by mishb
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    Re: Wegners in ears

    It was sinus first for me, and then I lost total hearing in my left ear.
    6 months after WG treatment started, the hearing started to return, and now the loss is only mild, and only noticeable when...
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    Re: Covid vaccins and WG

    You should not flare with stopping MTX for one week.
    MTX has a body life of 6 weeks, with it reducing in strength every week.
    This means that if you miss taking it for a week, then you still have...
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    Re: Happy New Year Old Friends

    Love to you both and to everyone else, from Oz

    What a crazy year we have all been through and continue to go through.

    Geoff you are so right about marta and her words, and you are also correct...
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    Re: Covid vaccins and WG

    I hope you have shaken the flu like illness now, Kirk, and that you are on the road to recovery.

    Two episodes in 4 months is really strange though, considering the amount of precautions that you...
  22. Thread: The Four Stages

    by mishb
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    Re: The Four Stages

    6. who is Santa :unsure:
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    Re: Question via email: Falls and tremors

    I don't have coronary disease, tremors or osteoporosis, but I do have Rheumatoid Arthritis and Osteoarthritis

    I think my husband would be very surprised if a few days went by, without me dropping...
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    Re: Thank You Everybody!

    Great to hear from you Chadwyck and wonderful to see you no longer have to say Ouch, except for minor issues.

    I'm sorry that you have seen one of our dear members has passed away. It's always a...
  25. Thread: Wegeners charity

    by mishb
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    Re: Wegeners charity

    Hi Peter

    Australia also have their own Vasculitis society. Refer to the link below

    Australia and New Zealand Vasculitis Society (anzvasculitis.org)
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