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Was in the ER yesterday because I simply could not breathe. Nothing seems to make much of a difference anymore.
the x Ray showed interstitial lung disease with mild edema. The ER doctor tried to...

Hi everyone, hope you are having a nice weekend.

Ive had a perforated septum for many years now.
Have been diagnosed with heal diffuse immune syndrome
and mesenteric vasculitis. About 4-5...

I checked into going to John Hopkins.
they do not take my insurance
will check into financial assistance in case this next rheumatologist
does not work out.

Hi, sorry I could get back to you till now.
your support definitely helped my attitude after the rheum docs.

My charger wouldn't charge my phone and I felt too sick to fool with it.
it's my...

Am on my way to UVA , a teaching hospital in Charlotsville,, VA.
These doctors have in mind to take me off immune suppressants completely.
I am armed with reports of a wrist with torn tendons, ...

This morning I coughed up some tiny white gel stuff, about 4 pieces.
Just recently found out from a CT scan that I have ground glass opacities in my lungs. Could it be related?

Was wondering...

A a little over a month ago I had a fever of 101-103, aching, some chills and bronchitis. I have problems with my lungs and tend to get bronchial infections because the immune suppressants lower my...

In Dec the rheumatologists cut my immune suppressants in half. I didn't get as many bronchial infections but my lungs and joints deteriorated anyway.

i see a pulmonologist for my lung problems. ...

I I also am sorry for your loss. I hope you find some comfort in the memories you have of her.

As far as health insurance I would recommend looking into Obama-care. SSDI is a good long term...

hi, am here again, hopefully for a while. doesn't feel very safe out there sometimes and my family can only take so much.

i have a very aggressive immune disease but undiagnosed.
i picked up a...

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hi
its been a few years since I've been here. Was sick off and on and had trouble keeping up with everyone. I truly appreciate the support and info I got at the time.

i have not been...

Hi, I'm not able to keep up with the discussions and don't know at this pointnif I have Wegner's but you guys have helped me a lot in the past. I hope you can again.

i found myself texting on my...

perhaps it would be good to consider doing the injections for the anemia that you mentioned at your other post.

Hope you get better soon!

Hope

I am sorry you are going through this. That must be scary! What does your dr. say about it?

Please take care of yourself and keep us informed.

Hope

Hi Alysia:

Don't quite know what to say, except I agree, how wonderful to have a friend that cares and is so touched by what you are going through...!


I can relate in a different kind of way....

Thank you to everyone for being so supportive....I will let you know how things go.

I got some blood work done, but everything usually seems ok in that. The real damage can be seen in...

Hi Everyone...

I hope you remember me. I'm the one who has that yucky scabby mess going on in her nose.

I don't feel we'll enough to go into details but my rheum doc appointment went very...

I'm so sorry to hear about your pup. Mine have been and are so loyal and such good company when I am sick. They also keep me going because I need to feed them and take them outside.

My prayers...

There is a type of vasculitis called mesenteric vasculitis, which causes inflammation and spasms of the mesenteric vein system in the abdomen. My main rheumatologist believes that it is possible...

Hi

My rheumatology appointment is Thursaday.
my ENT is recommending that the rheumatologist consider the possibility of Wegner's as a diagnosis, or treat me as though I had Wegners, due to...

Hi, I was at the ER from 9 am to 4 pm. By morning the pain was very mild, but I went anyway.
I explained how bad the pain had been during the night before, and exactly where in the groin it was...

I raised two girls while sick a great deal of the time and I don't know how I did it. There were a lot of things that I could not do. I have seen that it's unhealthy to feel guilty about things...

Hi.. Am nervous and can't sleep.

I hope I am not alarming anyone unnecessarily. For the past 5 days I've had a pain in the groin area that I at first thought was a swollen lymph node. Today the...

Hi Alysia,, I hope your coughing gets better soon.

I've just started looking into the possibility that my immune disease may be Wegner's. I've had some problems with coughing for months now. ...

Pass out (sorry about that). I also take Plaquenil, and Baclofen, a muscle relaxer.

When the immune suppressant levels were working well I had plenty of energy for the first time in my life. Now...